Too young for Interstitial Cystitis

[Irene6872]

My 21 yr. old daughter has become sexually active within the last 6 months and has suffered what we thought has been 2 UTI's.. Severe bladder pressure and frequent urination.  She was cultured with no sign of infection and given macrobid..didn't work...and then given levaquin and prescribed 800 mg. of ibuprofen every 4 hours.  This episode took 9 days and 2 different doctor visits to get better.  This last time the doctor told her she's too young to have interstitial cystitis however, again her urine is clear (as it was last time with both the urine test and cultured test). She's feeling severe pressure and frequent urination.  Is she too young to have interstitial cystitis?  ( My bladder  issues began when I was 22yrs. old and worsened after I was married at 24yrs.old.

[missingaaden]

You need a serious second opinion. I was diagnosed at the age of 16 and had problems since I was 15 (when I became sexually active).. Since then I have had multiple procedures and treatments. If you have any questions please feel free to ask but that is not true and it needs to be taken seriously!.. It is painful and not fun to deal with especially when it gets worse!

[k2farhat]

Hello Irene,

I am a 26 year old female and begun having my IC symptoms at age 21 as well. The problem is doctors do not know enough about the disease and often don't believe its real. I wish your daughter the best of luck!

[MSKshelly]

That is not true.  They are finding that IC is actually found in children even very young children but is often left undiagnosed or misdiagnosed since doctors do not think to look for it in kids.  I have just finished a book for kids with IC that I am in the process of publishing!  This has been a 2+ year project but there is nothing out there for kids with IC.

YOu might check out the ICA or IC Network to learn more about IC in those that are young!

Shelly