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Should I be asking for more testing?
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Should I be asking for more testing?

Hi everyone

I am a 21 yr old female, in decent shape who has had digestive problems on and off for the past four years. It all started when I went to live away at school and I noticed I could no longer really digest dairy very well or also red meat.I would get very bad stomach cramping, a feeling of getting full only after a little bit of food, excess flatulence,  alternating diarrhea and occasional constipation. I have basically cut out both of these from my diet, just not consistently. It's my recent symptoms that have me concerned. I originally went to my pediatrician because for the past 2 months I've been having severe fatigue, joint aches, back pain, severe headaches 3 or more days a week, occasional low grade fevers. She was doing some testing and felt inflammation in my intestines. The next day my stomach swelled to the size of a 6 month pregnant woman and has not decreased at all in three weeks. I have still been having back pain, abdominal cramping with whatever I eat, running to the bathroom around 20 minutes to an hour after I eat, mostly diarrhea/loose stools, loss of appetite, and loud gurgling in my stomach. I went to the ER two weeks ago because my pain got so bad, but they did a transvaginal ultrasound, saw no pregnancy or cysts, no fluid build up and sent me home with no diagnosis. I started seeing a GI two weeks ago who did a 3 way abdominal x-ray and found excess stool in my intestines, even though I've been going around 4 times a day or whenever I eat. He said I either had celiac, crohns, IBS, or IBS and small intestine bacterial overgrowth. I just did bloodwork for Celiac and vitamin deficiency, all came out normal except I do have a positive ANA and evidence of a past mono infection last year. He also said theres evidence of some kind of  inflammation but its borderline. My main question is should I ask for more testing? i'm going for an HBT on the 28th to rule out SIBO and i'm trying to schedule an appt with a rheumatologist to see if I have something else going on (theres suspicion of lupus, chronic fatigue syndrome or fibromyalgia because fibro runs in my family on my moms side) Should I insist on a colonoscopy? My GI doesnt seem to want to recommend one and is kinda just giving me the "oh you most likely have IBS" but isnt IBS more often a diagnosis of last resort after you have ruled out other things? Could i still have a gluten sensitivity even if my blood test was negative? I have so many questions and I am in so much pain but no one is taking me seriously. please help!
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I answered some of your other questions in the gastroenterology community, but in regards to IBS, I'll answer those question here.  IBS is often a diagnoses of exclusion or that if you don't have something else causing your symptoms, it could be IBS.  There are also specific symptoms that usually go along with IBS.  Yes you can still have a gluten sensitivity even if your blood test was negative.  A colonoscopy sounds like it might be a good idea.
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