KIDNEY DISEASE & DISORDERS COMMUNITY
Congenital Nephrotic Syndrome

Congenital Nephrotic Syndrome

Hi,
I got a son with a problem by birth called CNF and as per Doctor report there is no treatment other than kidney transplant but results are not fruitful.
The disease is described here,
The baby has Congenital Nephrotic Syndrome most probably Finnish Type. The baby cannot retain his proteins and losing in urine. It is a bilateral kidney disease with no other congenital anomaly. It is an autosomal recessive disease and has genetic base.
Please help me in this regard that is thery any chance for my son to survive. He is now 2-months old and has been in Hospital since his birth dated 11.10.2010.
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