KIDNEY DISEASE & DISORDERS COMMUNITY
Doctor Question: 'Cystone' for treating Cystinuria?

Doctor Question: 'Cystone' for treating Cystinuria?

Howdy Forum, and Doctor...

I'm a regular poster here, and I know it may be a little while before you get to me, so no worries, but what do you know about 'Cystone' for use in the treatment of Cystinuria?

I stumbled upon a Mayo Clinic medical study (results aren't published yet, as far as I can see), but maybe you have some sort of super-secret doctor access to study-results that us mere mortals don't have access to?

I try and keep up with all Cystine related research, and have contacted the Mayo Clinic directly, but have not heard anything back from them.

Any ideas Doc?

A little background, in case this plays into whether or not Cystone will work for me:
*Diagnosed with Cystinuria at 19 (I'm now 38)
*7 PCNL's to remove large stones
*1 PCNL to remove Cystine-Stone encrusted stent
*60+ Cystoscopy's to remove ureteral stones
*1000's of stones of varying sizes passed 'naturally' over the last 19 years
*Stricture at L3-L4 where stones get hung up
*Have tried D-penicillamine, thiola, bicitra, polycitra-K, but side-effects were too much to handle
*Hydrate 3-5L of water, daily
*5'11", 175lbs, Caucasian male in excellent health other than the stones
Tags: Cystone
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