End stage ckd

[Saskia1608]

Hi all x my grndad has ckd and we've recently been to the consultant and been told things are slowing down fast,we've been told that a palliative care team will be in touch in
next couple of days,does anybody know what this entails ? Praying for a miracle

[Saskia1608]

My grandad doesn't know the time is coming,to be honest nor did we we expected xmas time x I just pray he isn't in pain at the mo he's mobile and doin ok just very confused and muddled xx his gfr is 5 x the consultant and epo nurse can't believe he's doin as well ad he is considering xxx i'm so gratefully for ur advice at such a difficult time xxx I know he will be free of suffering as in some ways he is now xx there's just no support out there for familys going thro this xxx I can't thank u enough for ur kind words xxxx

[lindahand]

The palliative care team is excellent. They will make sure he isn't in pain, and if he is still coherant ask him what his end of life wishes are such as tube feeding, etc.

Sometimes the miracles are not the ones we wish for. The miracle will be that your Grndad will be in heaven, free from pain, free from suffering. Don't waste the time that you have now. Be there in every moment you can. Laugh about old times, cry about old times. The worst thing you can do is to leave them alone. You may not know what to say, but say something. I love you always works. Even if they can't say anything back, keep talkings as the say auditory is usually the last thing to go.

My grandfather passed away from CKD about this time last year. It was tough to see him go. I know though he is in his younger body, free from the aches and pains, probably up there telling God what to do. lol.

Its going to be hard, but you have been given a gift. You have the gift of time to say goodbye.

My thoughts and my prayers will be with you.