Liddle's Syndrome

[blueyes7648]

Hi, I am just wondering if anyone has heard of Liddle's Syndrome, I am a 27 year old female that has had high blood pressure since I was 17, and this last year I have had many other symptoms pop up, fatigue, tinnitus, headaches, dizziness, ear pain/pressure, allergies out of the blue, fast heart rate, and just plain feeling like **** all the time. I have had many tests done, and so far everything has come back normal, except I had a aldosterone/renin level done, and by the lab's standards it's within normal limits, but everyone I have talked to online have said they are way off. My aldo was 1.6 and renin was 2.
I always seem to have low end potassium levels, and high end sodium levels. My endocronologist brushed off the idea of Liddle's syndrome because he said all my results were normal and it is a rare disease. If anyone has any info on the subject, that would be wonderful! I am just at my witts end here, I have been from doctor to doctor, specialists and I just need to find out why I feel like this.
Bridget

[foreverinfaith60]

Hi I'm Linda and I have Liddle Syndrome. Must have had it all my life. Have had low potassium and high BP and a high salt problem since I was 23.I am now 60. I always took potassium pills and they said that was from high BP but no one EVER wanted to know why all this time the same problems. Nothing else.So one day I was very very sick at work . I was throwing up all day and my tongue was tingling and my face and nose went numb. I was losing strengh and by the time I left work and in the car I couldn't raise my arms high enough to drive home. I drove with my hands on the bottom of the stearing wheel. I pulled off the road and thought to myself I will just die here. But then God gave me strength to go on home. I pulled in my drive, by then I couldn't move my body at all. My friend from work called my husband and he came and pushed me over and went to the hospoital. I had a TIA stroke from low potassium! On setp 26 this year, I had colon cancer surgery and the Liddle syndrome caused me to flatline 3 times and air lifted to another hospital that new about Liddle Syndrome. They saved my life. I want more people to know about this could be deadly disease. You are the first and only person that I know with this disease.Very few docs know about this.I thought I was going to have a stroke, I told them,they had to google it. Except I flatlined and had seizures, many of them . My potassium, electrolites, maginesium,numbers were critical and it's Gods will that I made it through.It made my heart to go out of rythum and I now have an ICD Implanted cardio/ defib in my chest.My potassium level was2.3  Critical! I have more to tell you but I would like to hear from you. God bless you        foreverinfaith60