Our baby has duplex kidney and 2 ureters on one side causing dilation of one of the ureters and poor function in the top pole of the kidney. She has had 2 UTI s already and has a nephrostomy tube to drain the dilated ureter. The Dr thinks she needs a ureterostomy ( diverting the ureter out through the skin to drain into her diaper) until she is 12 months old when they will do corrective surgery. Is there anyone with experience of this? We feel it could lead to recurrent infections having an opening like that . I have read that therebis a constant trickle of urine and the baby can get frequent yeast infections. Any advice/ info would be appreciated before we talk to the dr again and make a decision.
Hello and hope you are doing well.
The exact treatment for your child’s condition can be opined only after knowing a complete medical history and clinical examination. If his urologist and nephrologists team feels that this procedure is the best option it is best to follow them. They will be able to provide you information about what to expect and how to manage after surgery. Have a frank discussion with the treating doctors. I hope it helps.
Best wishes and regards!
Thanks Dr Sharma, appreciate your comment. We have had more discussions with our daughters team and have been reassured that the temporary ureterostomy is the best way to go.
We just hope all goes well.
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