VERY frustrated... lots of pain and NO answers!! Pls help!

[shannonwooten]

I am in SO much pain and it has been coming back here and there whenever it wants to for the past 6 months.

Started in May, after 2 weeks of pain I went to the hospital. Low level of blood in my urine. Doctor said it was kidney stones. Sent me to get a CT scan... didn't show any stones. I felt something move from my kidney to my bladder 2 days after the scan. Pain resided a little bit... just maybe a sharp pain 2-3 times a week.

Beginning of Sept the pain came back severely so I went to the hospital again. This time they found a lot of blood in my urine (Level 3+ which is the highest level I hear) and ordered me another CT scan... came back normal. Again, felt something move 2 days after my scan... pain gradually went away but not completely.

Doctor has no idea what I have a lot of blood in my urine and in so much pain with normal CT scans... so he referred me to a urologist... I made an apt and I can't be seen until Nov 20th.

The pain came back yesterday... a lot of pain today. I am SOOOO frustrated having all this pain with no answers. I am getting really worried that this pain has been lasting for 6 months off and on.... and what is with all this blood in my urine?

I am so upset... what is wrong???

The last two days I have

[shannonwooten]

Btw... I don't know if that has to do with anything... but my vision has gotten worse lately!

[jollyman069]

i am on dialysis maybe you should see a nephroligist

[Belj]

I had some thing similar Monday night i went to the toilet and was in a lot of pain and when i looked there was a lot of blood in my urine i got rushed to a & e which they didn't take any tests apart from a urine sample came back to me and said they didn't know what was wrong could be a water infection or kidney stones but they wasn't sure because i didn't have any back pain or stomach pain. They just gave me a 3 day course of antibiotics which has cleared it up but its just worried me how can they send someone home who has lots of blood in their urine without knowing whats wrong. I told them that the same thing happened about 7 years ago but when that happened i just got told it was a water infection and that was without any tests. I was worried the other night it was an STI but i've been told since then that because i've been with my partner for 7 years i would have known if it was that. I'm just worrying myself and making up illnesses because no one will give me any answers and i really don't know if it'll come back again or how to prevent it but i have never felt pain like it.