What are your experiences with Vesicouretic Reflux (bilateral/unilateral reflux)

My daughter was diagnosed with bilateral refluxing ureters when she was only six months old. She is now 4 1/2 and doing well, but facing surgery. I wrote this article http://factoidz.com/when-your-child-has-bilateral-refluxing-ureters/ for all my friends and family who always have questions for us about the antibiotic she had to take for nearly three years. I am also wanting to be a part of a community as we approach more testing and surgeries. Thanks!