KIDNEY DISEASE & DISORDERS COMMUNITY
dark mucousy urine with crystals

dark mucousy urine with crystals

I had a liver transplant 2 yrs. ago.  At that time, I was diagnosed with polycystic kidney disease.  I have a 25 yr history of kidney stones.  About a year ago, my urine started getting progressively darker.  I then noticed that there was a sandy, crystal type sediment which has increased in amount over time.  About 4 months ago, I started passing a mucousy like substance that almost has a flesh like quality to it with loose skin attached.  I asked the transplant clinic about this, and they said they had no idea what the problem is, but to follow-up with a urologist.  I have made an appointment, but it is two months away.  My urine is now the color of dark amber to a thick, mud like color, which seems to improve after I pass the mucous material and sandy substance.  The latest symptom is that my stomach is swollen on both sides and I have tremendous bouts of pain in the abdominal and back areas.  I quite often run a low grade temperature, and have a general feeling of fatigue.  I have hep C and have always contributed the fevers and fatigue to it.  My viral count is now 6,000,000+ but the drs. don't want to treat because of the damage it would do to my liver.  I have monthly labs done and there are some points of concern with them.  GGT=449, Alkaline Phosphatase=689, Eo% = 12.7, BA =2.1, RBC=3.62, HCT-34.7, LY-30.9.  Post transplant, my bilirubin dropped to .08, and stayed there until about 4 months ago.  It is now at .42 and appears to rising.   All of my other tests are within normal range.  I am on 1 mg. of prograf 2 X day.  

Do you have any thoughts as to what could be going on with my kidneys?  Should I try to get a sooner appt. with another urologist, or perhaps a nephrologist?

I am really worried about all of this, and would appreciate any insight.

Jimbo1951
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