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newly diagnosed medullar sponge kidney disease
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Kidney stones, also called nephrolithiasis are solid pieces of material that form in the kidney from substances in the urine. Discuss topics including prevention, symptoms and passing kidney stones.

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newly diagnosed medullar sponge kidney disease

Is it better to see a nephlorogist or a urologist after being diagnosed today with medullar sponge kidney disease?  My 16 y/o daughter was diagnosed today by our local ER.  
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Avatar_dr_f_tn
Hi,
How is your daughter? Medullary sponge kidney (MSK) is a birth defect of the tubules inside the kidneys and may cause hematuria, kidney stones, and urinary tract infections. A referral to a kidney doctor or nephrologist may help. Treatment for MSK  involves managing UTIs, removing kidney stones, and preventing recurrent infections and stones. Take care and do keep us posted.
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168348_tn?1379360675
Thanks Dr. Santos!

I have MSK and would like to also suggest you visit our MSK community here on MedHelp at http://www.medhelp.org/forums/Medullary-Sponge-Kidney-Disease-MSK-/show/256

Many of us MSK'ers find a Uro is better than a Neph for us unless there is kidney damage or disease involved .. sometimes, too, it takes many doctors to finally find one who fully understands MSK.  Usually the ER Docs need to do a search on line for it but won't admit it, but you can tell by their face :0

C~
MSK w/stones
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168348_tn?1379360675
Here is a link to our Health Pages and some links under FAQ that may help you a lot .. http://www.medhelp.org/health_pages/Urology/MSK-FAQs-Resource-Area---Many-Medullary-Sponge-Kidney-Links-for-Common-s-/show/504?cid=185

C~
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