LEUKEMIA & LYMPHOMA COMMUNITY
4 months of testing..and still no answers

4 months of testing..and still no answers

I wrote a while back explaining that this crazy journey had begun with some really bad headaches during the night and some swollen lymph nodes in my neck (that by the way have deminished).  My GP did a CBC and  put me on a Z Pak of strong antibiotics in case there was some infection.. My white count came back at 18,000. He had me come back after the round of anti's and test again and my counts were still up at 16,7.  He referred me to an oncologist/hemo...who has put me through the ringer.  Immediately wanted to rule out Hodgkins, which he did, by CT scans of the chest , abdomin (abdomen), and pelvis. In the course of this, a tumor was found in my liver, but an ultrasound showed that it was a hemangioma, which is benign. The dr. said that is not the cause of the high white count. He said if the next count was high he wanted to do a bone marrow aspiration to rule out CLL...so I was sent to the lab for blood and urine testing...When the results came back the blood count had dropped between 13 to 14, so he decided to wait 3 weeks to test again...No bone marrow test yet...After 3 weeks we did the blood and urine test again...urine clean..no infection...blood back up to 16...No sign of infection anywhere.  He decided to do a CT scan on my head since this began with headaches, and by the way the lymph node in the neck do not appear swollen any longer.. I have been so frustrated. CT scan on my head was ok, but he wants to do an MRI now to make sure there are no aneurisms.. That is all fine, but I am concerned about this white count that has been abnormal for several months with no sign of infection. I have never had a problem with my blood before. I have read up some on CLL and a lot of people have white counts in the lower ranges, from 12 to 20.. I have occassional night sweats, still have headaches, and always tired.  I don't know if the fatigue is just from stressing over all of this or what.. My parents both had cancer, my cousin had leukemia, many uncles had cancer...it's all over my family.  By the way...I finally had the bone marrow aspiration and I guess biopsy, too.. I know he took a piece of bone.    I guess that even if the news was not so good, it would be better than this not knowing.    Any insight?   Thanks for listening.
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