LEUKEMIA & LYMPHOMA COMMUNITY
Confused what to do next

Confused what to do next

I had a kidney ct scan last year that showed I had several granulomas in my spleen. At the time my Dr. didn't seem concerned so I left it go. Well a year later I am feeling tired all of the time, my white blood count has been borderline low twice and 1 or two points below the low cutoff twice. I also have unexplained bruising, leg pains and digestive issues. My sister has CLL and I am a perfect match for her to recieve a bone marrow transplant from me. My concern is I do not feel well and with the low white blood counts I am concerned about being her donor. My health has been good with no frequent infections or fevers of any kind but it's just I am tired all of the time and my legs hurt. I saw an Oncoligist and she is doing another cbc to see where my counts are. She also wants me to have another Ct scan to see what the granulomas look like which I am a bit reluctant to do because of the radiation you recieve from those tests but not sure which way to go at this time. She also said if I want a bone marrow test she would do it to ease my mind about any cancer issues. I don't really want to go through that pain if I really don't need too. I am thinking about asking for an ultrasound of the abdomen instead of the ct but not sure this will be good enough to show what they are looking for. Any advice? Have any of you had spleenic granulomas and low white blood counts? If so, how did you proceed?
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Hi bixa525,
First off, I would like to commend you for being a donor to your sister.  That's just awesome.  It sounds like the oncologist is doing all the right things needed to check on your symptoms.  I can tell you that a bone marrow test really isn't as bad as it sounds...really.  Especially if your doctor is good at it.  Talk to your doctor about the extra exposure to radiation.  I can understand your concern, but I believe the amount of radiation you are actually exposed to is pretty minimal.  

Good luck and keep us posted on what you find out.
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