Leukemia & Lymphoma Community
Could it be leukemia?
About This Community:

This patient support community is for discussions relating to all leukemia and lymphoma issues, Chronic Myelogenous Leukemia (CML), ALL, AML, CLL, SLL, anemia, biopsy, bone pain, chemotherapy, Hodgkins Lymphoma, monoclonal antibody therapy, Non-Hodgkins Lymphoma, stem cell transplant , swelling, vaccine therapy, weakness, and weight loss.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Could it be leukemia?

I had high platelets last fall and was referred to a hematologist. I since went back for a check up on it and they found high white counts also. My platelets were 487 and had gone down alittle from last time. I thought he said my white count was 17 but I wonder if I heard him wrong and its 70. I have had some bone pain and they thought I had a stress fracture and they did a bone scan that showed some arthritis. My hips ache at times too. But mostly now I get aches all over...mostly my arms and hands. I dont usually get sick and was very active..walking 2 or more miles at least 3 days a week. Since all this started I ahvent been walking. I really dont feel sick I am just so worried I think I am making myself feel worse.
My armpits feel inflamed and I also feel my glands on my body, its weird but they dont hurt just feel inflamed. With high white counts the hematologist mentioned leukemia. He ran several tests before he said that but he said he didnt see any leukemia cells. He said we could go ahead and do a bone marrow biopsy or just wait a few more months. I am worried and when I talked to him about it he said I shouldnt worry about it.
Related Discussions
7 Comments Post a Comment
Blank
623944_tn?1244039090
Normal platlet ranges are 150,000 to 450,000 platelets per microliter, yours is slightly elevated which could mean nothing at all. In leukemia, platelet levels drop. Do you know the rest of your CBC values? There are many different things that can cause an elevation in your white count, it's the other values that point a finger in determining the cause.
Blank
Avatar_f_tn
Hi:  I do have Leukemia.  I felt fine.  I just went for my yearly routine check up and blood work.  My WBC was 17, and the only thing I was complaining about was Fatigue.  I was fortunate that I was the Oncologist's secretary.  I went and showed him my blood work.  He said it could be nothing, but lets do a Bone Marrow Biopsy to check things out.  He did not wait.  That was back in 1998, and I was diagnosed with CML.  I have been in remission for over 7 years now.
Do not think the worst, but I would not wait.  Do another blood test to see what the numbers look like.  This is just my advice. I hope you get good results.
Blank
Avatar_f_tn
Thank you for your comments. I have called my family doctor and he will get me set up with a specialist at Vanderbilt asap. I know something isnt right but I was hoping it would go away. I havent felt good and I need to know as it is worrying me. Vanderbilt is one of the best in the nation and I know I will be in good hands. God is in control and he wont give me more than I can handle.
I have a friend who had more symptoms than me and we really thought she had leukemia. She has ITP.
Do you know of any places to read on natural treatments for leukemia? I am not against doing whatever the docs say but I also believe in vitamins etc.
I will keep you posted.
Thank you
Blank
623944_tn?1244039090
Thank you for the update!
I don't know much about vitamins and natural treatment options. Hopefully Suzzie61 can pop in and give some advice.
Only you know your own body. If you think something isn't right, then keep pushing for answers. I did, and still am. I did recently discover I have small fiber neuropathy, but they're not sure the cause. Maybe auto-immune. But now I have confirmation that my fatigue, my pain and appearing/disappearing flu-like symptoms are not in my head, they're caused by something!
Don't give up looking for an answer.
Please do keep us posted!
Blank
Avatar_f_tn
Update: I saw a Hematologist/Stem Cell and they did more specific blood tests. The Doc had the nurse call me and said the blood tests were reassuring and they will do a follow up in 3 months. I still feel achy, tired, and know something isnt right. I would like answers, but I am relieved it isnt Leukemia. But I am worried that it might be turning into it. Im not really sure what I should do, just wait until something changes.
Thanx
momof6and2
Blank
Avatar_f_tn
If I were you I would start asking for a copy of the test results instead of just accepting their answers.  
I was seeing a hem/onc for periodic checks after a mastectomy and asked to see the results of my blood work and that is when I noticed my out of range (H)WBC and lymphocytes.  After 2 yrs and no diffinitive answer except watch and wait (tracking) for CLL I asked the dr. about further procedures to define the CLL, what type, status, etc.and his answer was I can't do anything more. Changed drs.  and now am getting things done.  Hate to disturb you but your symptoms are the same as mine.
If you do get your reports there is another CLL forum that has a LOT of info. and will help you read your reports. Go to www.CLLforum.com
Can't emphazise enough about having your own copy of your blood work.
Blank
Avatar_f_tn
I asked right away for a copy of my labs and any notes the doc has. They are supposed to be sending them to me. What is frustrating to me is I wanted to talk to the doc and have her explain everything to me, all the nurse said was "its reassuring" and thats all. When I asked more questions she didnt know anything else. I am a research and a I wanna know person. I called again and they never called me back, so I guess I will call again on Mon. My white count went up to 12.4 and it was 11 a few weeks ago. My platelets went down to 478, they started at 572. I am drinking alfala juice and taking a lot of vitamins, and drinking fresh vegetable juice daily. I know and feel my blood isnt right. I just know. But maybe it hasnt turned into leukemia enough for them to tell.
Thanx for the site to go too. I will use it.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Leukemia & Lymphoma Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Leukemia & Lymphoma Answerers
1081992_tn?1389907237
Blank
Ken_PA
PA
907672_tn?1381029323
Blank
Mochadelicious
WA