Leukemia & Lymphoma Community
Itchy burny lymphoma - Cures?
About This Community:

This patient support community is for discussions relating to all leukemia and lymphoma issues, Chronic Myelogenous Leukemia (CML), ALL, AML, CLL, SLL, anemia, biopsy, bone pain, chemotherapy, Hodgkins Lymphoma, monoclonal antibody therapy, Non-Hodgkins Lymphoma, stem cell transplant , swelling, vaccine therapy, weakness, and weight loss.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Itchy burny lymphoma - Cures?

Does anyone have any remedy for the burning and itching caused by non Hodgkins lymphoma cancer?  I am going crazy and want to rip my skin off my body.  My doctors say they have no more medication to try to reduce it.  I just have to wait 1 1/2 weeks till my next chemo session and hope it goes away after that...  Please help!
Related Discussions
29 Comments Post a Comment
Blank
Avatar_n_tn
Hi.
I understand what you are going through.
Are you already taking any medications for the itchiness or burning sensation on the skin you are experiencing?  You may try taking Cetirizine or Hydroxyzine to control your symptoms.  
Good luck.
Blank
Avatar_f_tn
Thanks.  My doctors tried a couple of medications but none had any affect and they have now said that there is nothing else to try except an anti-depressant (Mirtazapine) which only may have an affect on the itching after 3-4 days and carries side effects I really do not want to deal with right now on top of everthning else.  I will ask my doctors about the medications you have suggested.  Best regards.
Blank
Avatar_n_tn
Hi.
Itchiness or burning sensation of the skin is one of the B symptoms of lymphoma.  With chemotherapy, this symptom should eventually resolve.  The medications given to you are supportive measures to also address the itchiness.  
Good luck.
Blank
Avatar_f_tn
Hi

The doctors gave me Cimetidine which did not have any effect.  They then prescribed Mirtazapine but this is an anti depressant and twice before I have had allergic reactions to anti depressants so am very reluctant to try them.  Are the 2 medications you suggested of the same family as either of the nes I have been given?  If not I will try to get a doctor to prescribe them for me.

Thank you so much for your advice.
Blank
Avatar_n_tn
Hi.
Thanks for the update.
The drugs I mentioned are different from the drugs you previously took (Cimetidine and Mirtazapine).  Cetirizine and Hydroxyzine are antihistamines from the piperazine class.  Cetirizine is a non-sedating antihistamine, while Hydroxyzine is a sedating antihistamine.  
You may also ask your doctor for a possible combination of Cimetidine and an antihistamine (H1 blocker).  This may control the pruritus/itchiness you are experiencing.  
Good luck to you.
Blank
Avatar_f_tn
Hi, Thanks for the clarification.  The itching is less now, so I hope this means the tumour is reducing!
Blank
Avatar_n_tn
Hi.
It’s good to know that the itchiness of the skin has gone down.  This may mean that you are responding to your treatment and the lymphoma is being controlled.  Do continue with your present treatment to achieve a complete response.  Regularly follow-up with your oncologist and report any treatment side effects.
Please do post any updates.
Good luck to you.
  
Blank
Avatar_f_tn
Hi I really hope it does!  I have my first CT scan on the 17th April and get the results on the 22nd. I have my 4th CHOP-R on the 23rd and then I am half way through.  I will let you know the results of the scan.

The main side effects I am experiencing are severe constipation (I have tried Lactulose 6mg, Bisacodyl 5mg, Magnesium PCH 724 and Microlax and still can't go) and constant numbing/tingling in the fingers of both hands.

Thank you for your ongoing support.
Blank
Avatar_n_tn
Hi.
The symptoms of constipation and numbness/tingling of fingers are side effects of chemotherapy.  Supportive measures can help relieve the symptoms.  Vincristine can cause both constipation and neuropathy, and usually resolve after the chemotherapy.  It may take several months after chemotherapy before the neuropathy improves.  
Please do post the result of your scan.
Stay positive.
Blank
Avatar_f_tn
Hi, the results are in.  The tumour has reduced from 7.6cms to 4.6cms. Progress is being made!
Blank
Avatar_n_tn
Hi.
That is great news.  I am so happy for you.
You are responding well to your chemotherapy of R-CHOP.  You will just continue your chemotherapy sessions and hopefully the tumor will be completely gone before the end of the chemotherapy session.
Good luck and God bless you always.

Blank
Avatar_f_tn
Hi again

I am having another scan in 2 weeks and hope to be able to give more positive news afterwards!  

In the meantime my father in-law has been diagnosed with neuroendocrine cancer, but they say they dont know where it is coming from and where the tunour is located and after being 7 weeks in hospital, he has still not commenced any chemo or radiation... I have tried to find info on this cancer but it is really rare.  Can you help or do you know someone who can?

Thanks again so much for your support!
Blank
Avatar_f_tn
Hi

Well chemo session number 7 (of 8) was on Wednesday and a CT scan was done on Thursday and has shown the tumour is still 3.6cm.  I was expecting it to be gone or to be a lot smaller, so I am worried that I am no longer responding well to the R-CHOP treatment and that I will now require further chemo and or radiation therapy...
Blank
Avatar_f_tn
To continue my monologue

I completed chop r 3 weeks ago.  I had a pet and ct scan last week, my tumour has grown again to 6 cms and is fully active.  It seems that I am meant to die.  My doctor told me that this is the first case ever where a tumour grows during chemo.  Dennis MD, you have been very silent, I would like to know if you have any insight to offer. Thank you.
Blank
Avatar_n_tn
Hi Angel.
How are you doing?  
You initially responded to R-CHOP regimen but then progressed after completing treatment.  Do not worry.  There are still other options for you.  There are other second line chemotherapy regimens available that can be used.  Examples include ESHAP (etoposide, cytarabine, cisplatin) and DHAP (cytarabine, cisplatin) with or without rituximab.  You should ask your oncologist for these options and other options as well.
My prayers are with you.  
Blank
Avatar_f_tn
Hi DennisMD

Thank you.

Mentally I am reeling, I dont know whether I will live or die or even if I can cope with the upcoming chemo.  The current treatment proposed is as follows: DHAP (5 days in hospital) 2 week break, then VIM (5 days in hospital) 2 week break, DHAP (5 days in hospital) 2 week break - at this stage they will also extract and refrigerate my stem cells, and another 2 week break from chemo and then BEAM, when they say I will die without receiving stem cell replacement.  They have told me side effects include loss of hearing, nausea and vomiting, weight loss, infertility, digestive and bowel problems etc

Is this a familiar/correct treatment plan according to you?  How likely are the mentioned side effets?  Any others?  One prediction of life expectancy is 30-50%, is this accurate?

I am so scared of what is going to happen to me and if I will even if I will survive.

Your thoughts are greatly received and appreciated.

Angel
Blank
Avatar_n_tn
I wish you best of luck and I hope your treatments will not be so difficult and they'll be successful and you will have long healthy life. How did you get diagnosed with lymphoma? I'm going through some scare at the moment as well and have been reading so much about it, but there is so much out there. If you are not feeling well, you do not need to respond to my message. Lots of hugs to you. Best Regards.
Blank
Avatar_f_tn
Thank you very much for your message.  My symptoms commenced with itching all over my body, even when I slept.  Eventually after 9 months of investigation, an x-ray was taken of my chest, showing that I have a tumour between my heart and lungs, subsequent biopsies proved that it was Non Hodgkins Lymphoma cancer.  I dont know íf this helps you ,but I really hope that you are mistaken and that you have something much simpler to solve!  Take care.
Blank
Avatar_f_tn
After 8 R-CHOPs, one R-DHAP, one R-VIM, one R-IM I had a PET-CT scan on Thursday.  The results show my tumour has doubled in size in one month, is now around 10 cms and I have a new tumour under my clavicle and one in my stomach.  The doctors say that there is no further chemo to try and no radiation possible.  They have given me less than 3 months to live. Do you have any further advice or a second opinion?

Thank you very much.

Blank
Avatar_f_tn
My body is now riddled with tumours but I have outlived predictions of more than 4 weeks of survival now, but I guess soon this is adios!

Bye from Angel who is going hopefully to heaven :)
Blank
623944_tn?1244039090
I have read your posts, and my heart goes out to you.
God Bless You!
D.
Blank
523927_tn?1257022304
I'm sorry to hear about your plight. I will pray for you and your loved ones. God Bless.
Blank
Avatar_f_tn
Thank you!
Blank
Avatar_f_tn
Thank you!
Blank
623944_tn?1244039090
I was so excited to see your post! How are you doing?
We're here if you need us!
Blank
Avatar_f_tn
Hi there, thank you, I am very tired and sore now, start looking forward to the end...
Blank
623944_tn?1244039090
This is always a difficult subject for me as I never know what to say.
Are you getting any kind of Hospice care for pain?
How ever this turns out - I wish peace and pain free for you.
Blank
Avatar_f_tn
I am waiting for my scan after 6 chemos for non hidgekins lymphoma, praying all is OK and I can leave this episode in 2009. Re itching try a light over the counter cream for relief of itching from mosquito bites - surprisingly helped me. Hoping my fingernails and toenails will return to normal colour. Hoping I can keep off the weight I lost in the last five months. Will have to exercise and eat carefully. Wondering how I will cope with a few full days of work in January. Happy to be alive.
Blank
Avatar_n_tn
hi there. the doctor discovered a lump under my neck and he thought it was lymphoma. i had blood and ultrasound test which came back ok. know i started to get a itch mostly my legs. do you have any other symptoms? what kind of non hogkins lymphoma was it? i hope they have cured it for you.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Leukemia & Lymphoma Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Leukemia & Lymphoma Answerers
1081992_tn?1389907237
Blank
Ken_PA
PA
907672_tn?1381029323
Blank
Mochadelicious
WA