Lymphnoid at base of skull headaches and pain

My daughter is 6years old and what appears to be a swallowen  lymphnoid at the base of her skull .
She at times has severe headaches and constant pain. When she was born she had a lump in the center of her skull that oozed . The doctors at that time thought it was an ingrown hair.So she was taking lots of antibiotic its never seemed to go away. Then she stopped taking them all together. It swelled the size of a baseball and burst. We were referaled to a dermatologist and he had started to cut in to remove it he noticed there was much more to this. So he stopped the removal and we were sent to a nuerosurgeon . When she was approximately 4 yrs old she had the surgery to have a dermoid tumor/cyst removed.It had grown a tail and looped in around the skull. Leaving a small hole in her skull. The doctor at that time at put in a fake piece of bone. A week or so later her body rejected that piece , which she had to have emergency surgery to have it removed. The infection was so severe she had to have a pic line. After a weeks stay in the hospital , there was no signs of the infection. And so they decied to remove the pic line instead of keeping the antibiotics going. There was always another part of her head that concerned the doctor he only could see a shadow in the scans. It looked as if someone had stuck a needle in her head , which never happened but there seemed to be a small hole .He told us to keep an eye on it make sure nothing came of it. Now theres  this knot , which we were told today is a lymphnoid. Is there any suggestions while we wait to be seen by a nuerosurgeon?