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Need an honest answer for once

by crazycats01, Oct 17, 2009 01:24AM
Thank you for your help in advance, I am 48 years old and I have 8 children, 6 girls and 2 boys all are grown and have moved on with their lives. I put 'other' in the topic line because I'm not sure what I have and I'm being totally honest with you, I just don't know and my oncolgist doesn't seem to know eaither. I was hoping maybe you could help us figure it out.
It all started in April of this year. I went to the E.R. with sever chest pains and I was having trouble breathing, I thought I was having a heart attack. They ran an EKG and drew blood work right away. The E.R. Dr. said that my heart looked fine on the machine but as a percausion he wanted to do a CT scan to rule out everything else, I agreed and off I went. I came back from the CT and I had another Dr. come visit me, a Lung Dr. he said that I had some weesing in my chest and he wanted to know if I had asthma, I said no, I have what my GP called chronic Bronc. especally during the winter months. (Mind you it's spring in April here in CT) Anyways he said that he would like me to come to his office and have a full work up done on my lungs when I get out of the Hosp. I told him that I would. Then the Heart Dr, came in and wanted me to stay in the Hosp. over night so that they could monitor my heart over night and do a stress test in the A.M. I agreeded to that too. And yet here comes yet another Dr., this one made my heart sink when she told me what kind of a doctor she was, she was an Oncologist. She began by telling me that they had found 5 enlarged Lymph Nodes near my heart on my CT Scan. Then she said that my Lymphocyte count was 76, which didn't mean anything to me at that time nor does it now. She then dropped a bomb and said that she thinks that I might have Hod. Lymphoma. I said, "wow you can tell all of that from a CT and some bloodwork". Then I began to cry, I said to myself they have to be wrong I can't have cancer I have 8 kids that need me. I went for the stress test the next day, that was bad enough to give anyone a really bad heart attack, they said that my heart looked fine and sent me home. My oncologist called me the next day and said that she wanted me to go see a Cardio Ther. Surgon with in the next week. I went to the Surgon and he looked at the CT Scan and at the Lymphnodes and said that he would try his best to take them all out, as one was really close to my heart he was worried that it would cause me to have a heart attack. He was able to remove them all but I had to wait 10 days for the results to see if they were cancerous or not. He told me that he had sent them to 2 different labs to make 100% sure. The first set of tests came back that the Lymph Nodes were susposably Non cancerous, but I still haven't any idea what the second set of tests showed as he never called me or my oncologist to let us know. For the past six month my Oncologist has had me do lots and lots of bloodwork to rule out different decesies, even Aids, and has had my liver, my painceres, my spleen, my gallbladder and my breasts checked and she has also done a bone marrow bi-optsy looking for anything that may be causing my lymphocytes to be as high as they are and they keep creeping up month after month. She wanted to do a PET scan in April but my Ins. Co. won't pay for it, so I'm gonna go for another CT scan in begining of Dec. My Lympocyte Numbers started in April at 76 , May they were 54, June 57, July 56, Aug. 58, Sept 59, Oct 69, I just don't understand what would cause them to go up as they are so doing? What do the numbers mean, does it mean that I have a lymphoma cancer somewhere hiding in my body as my Oncolgist thinks? And is there something I can do to lower them or make them go back to normal again? I'm just not sure what to think anymore. Thanks for listening to me babble on!!!  
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