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Swollen Nodes

Hello all. I have swollen nodes in my neck and in my groin. I had mono approximately 9-10 years ago. When I Drink alcohol my throat burns. I feel nauseas for some parts of the day. I have not lost weight and I have 2 negative HIV exams. I am at a loss for what could be causing this. I took a CBC blood panel today and I go back to my doctor in 11 days. My chest likewise feels heavy when I breathe and when I run. Any clue as to what this could be?
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Avatar universal
I'm so sorry to hear of your pain and troubles, pray it is not what u expect. I hope for the best. And I wanted to thank you for all the kind words, and for he vulnerability reaching out. I know I have no business speaking medically, can only say my experience. My Lyme dr is one of the top specialists in the country. He says that even treated Lyme (was yours acute? Or like me taking years to fully hit) can leave the coinfections around, and sometimes can show up in weird ways. They had me do 6 HIV tests and cancer I can't say how many. I say this hoping I am not being irresponsible, just trying to present options or thoughts from my life and new knowledge of the disease (it's really many diseases I guess?), maybe an igenix test (best lab for Lyme coinfections testing) is worthwhile if nothing can be found? Also mold is very common in people and at toxic levels can trigger Lyme symptoms back. I pray you are well and this is all just ideas, but at the small chance of helping I had to say something. I am sorry for the delay has been so hard in treatment despite my positive words and fighting attitude. Miracles happen. I am so sorry for the confusion and worry, it was so hard in the dark and even knowing is still, wow. But knowing there are other sweet and tough people out there gives me strength. I will keep praying they find something, but if have not yet and still feel lots of the problems, maybe the coinfections test and mold tests would be worthwhile? Real time labs for mold levels, even if Lyme cured can trigger certain things. I'm learning as I go, just hoping my Hail Mary idea based on my own treatment could help. Based on my blood cells, symptoms, and more, they kept assuming HIV over and over. I pray it is not with all my heart. I pray for a solution, and that I have only said helpful things and that maybe by miracle there could be answers in what I proposed, if I've learned anything it's that most drs don't agree on anything and many are in the dark for long term Lyme, coinfections can hide and mold toxicity can trigger new things even. Will pray for the best. Hope any ideas have helped. All the best to you, will keep sending love. One last note, a friend of mine has woken many people declared dead or vegetative up from comas, seriously. Been studies by drs and more. Maybe a dumb anecdote but helps me remember the soul is the pilot, miracles happen, and they happen through prayer intention and yes true healers. I pray u find a great dr or real healer, that the universe finally gives u a gift for all you are enduring. Sorry to ramble and prob repeat things most people either already know agree with or find silly. Just hoping can give any boost, and maybe, just maybe, there are answers in those specific tests. They don't show on most blood work. I can try to perhaps through my dr (gives lectures on Lyme throughout country so I'm sure he knows who is good and where) see if a literate one is nearby if u are unable. But if this is still a mystery and you are still suffering, and you have had Lyme, well u may have already done all this and I'm talking silly, just trying to relate some of my very recent miracles. Found hope when I was out, done, darkest night. Will pray u find relief answers hope and healing.

-ryan
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Avatar universal
Thanks for the response. I had lyme when I was 14 years old. I don't think it's recurrent lyme. I think all signs point to aids- hiv , despite 2 negative elisa tests. I am at a loss and so confused and worried.
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Avatar universal
Echoes much of my experience..., that is. Lousy phone typos...
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Avatar universal
Best of luck on the CBC. Thing I noticed most was crazy jumping of red blood cells as the coinfections love it. But praying it is nothing, Im sorry if I worried, just trying to show alternatives to leukemia or lymphoma as so so many drs and websites had me believe. All the best
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Avatar universal
Sorry to hear of troubles, sounded like me or still does in some ways. Have u been tested for Lyme and coinfections? By igenix or some ILADS approved lab since infectious disease drs are ******** from my experience, can be seizing in front of them and they'll say ur fine. Same results is positive by CDC, so I think it obvious. Treating for it is helping. While I don't hope u have anything, perhaps if this progresses and no answer is found worth a look. Hope this helps, prob nothing to pounce on or worry about; Just since it echoes much often experience I mention it so that if all seems lost this could be a direction to look (but no need to panic! May be something much less. Do u live in an area with Lyme? Sorry if this wrong or upsetting, got your message and thought this might be what u wanted. Ill pray u are well, stress alone caused me to have so many symptoms cant rule that out. Wish u all the best, sorry if bad answer just trying to help and it is painful to type so just wrote first response from my gut. Don't worry about this, just offering backup info I guess. Be well

-ryan
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