It sounds likd there are quite a few possibilities for what is going on. I can see why they are called shotty nodes then.
I just need to try and take my mind off it until all tests are back and there is more of a clear picture as to what is causing this. Easier said than done unfortunately!
Thank you again for your time and knowledge, it has helped me learn much more about what may be going on and the more possibilities about it being something less serious.
Ok i thought i would post an update.
I went to see a hematologist today (very quick refferal) and ive come out a bit more confused...
The doctor said that the nodes in my neck seem to be "shotty nodes", but he was concerned about the supraclavicular nodes. He was not 100% convinced it was lymphoma which is great and hopeful, but he was walking me through about the staging process and chemo etc
I need to have a CT scan from head to pelvis first before a biopsy as he said the nodes in my neck may be too tricky to biopsy. So ct scan is to look for more nodes (my chest and stomach are quite sore) and to tell staging... I also had 7 vials of blood taken to rule out tb etc but also to check for hepatitis as that can interfere with the chemo or something.
So, im not sure why hes talking about this if hes not thinking its lymphoma... And what are shotty nodes? Cant seem to find much info in that from google...
It does seem that TB symptoms are very similar. I didnt realize that basically anyone could catch it, I thought it was only most likely within certain situations such as being overseas or around cattle etc so I will keep that very much in mind. I will definitely ask the surgeon to see if he saw anything or can shed any light on it at the time.
I will post back after I have the biopsy with the results :)
The doctor did mention TB but said it most likely isnt that. I guess the biopsy is really the only way to find out.
When I found the node above my collarbone, i found the one in my neck at the same time. It does seem that there are a few other possibilities that may be causing this then other than the main one being cancer. And the itching under the arms, I have read there are many causes of this so it is most likely from something else.
Thank you so much for the information, it has given me more knowledge about lymph nodes and I feel a bit more at ease now. I will just hope for the best :)
And another thing: it's probably unusual for a lymphoma to start on the neck and then pop up above the collarbone -- or vice versa.
Also, itching under the arms is almost certainly from histamine, but that doesn't pin down any diagnosis. You might try an antihistamine cream or a cortisone cream for relief.
I dont know if this helps but I can see them. Thats how I found them first.
I was looking in the mirror and noticed a lump on my collarbone then felt the one in my neck.
I dont know if this helps but I can see the nodes, thats how I first noticed them.
I was looking in the mirror and noticed the lump on my collarbone first. Then felt the one in my neck after that.
Thank you for your reply.
It is hard to tell the size, the doctor didnt comment on size, and it has got larger since I saw him. Feeling the node in my neck again to try and determine size, I think it is more approx 2.5cm, maybe not quite 3cm which is a big difference i know.. its very hard to tell as there probably is swelling from me messing with it... I cant quite tell the size of the node on my collarbone, possibly somewhere between 1.5cm to 2cm... I know that is a big difference in size.. it is quite a bit smaller than the one in my neck.
I will go back to my doctor and see if I can get an ultrasound in the meantime while waiting for the biopsy, that might calm my mind down if there is fatty hilum in the node.
The nodes are hard, but I wouldnt say rock hard. More like the rubbery type feeling that ive read about.
Im hoping im just freaking out and it turns out to be something less serious.
Yes i guess i am, so i must be irritating it then. I would say its it roughly 3cm in size
Hi, do you happen to be pressing on the nodes a lot? If so that can cause irritation that makes them grow a little.
A lot depends on this question: What is the current size?
Tuberculosis can result in very large nodes, without there being cancer. Also, an affected node being above the collarbone and also in the neck can be consistent with tuberculosis. Yet you don't have the typical coughing, but then again coughing isn't necessary in every case of tuberculosis.
So the speculation can go round and round until a biopsy is done wherein a node is removed and examined. An ultrasound has the possibility of maybe giving peace of mind quicker. The reason that TB can create very large nodes is that the node fills up with something called granulomas -- and there are other diseases that create granulomas, too. So there is no need so far to assume that there is a cancer present. It's probably best to be aware of all possibilities, then just choose to believe in the best :)
Best wishes to you.