Treatment MDS Anemia

[CJ2341]

As a new member , I posted this on Feb 17th but do not see it listed so. I'll try again.. Please be patient.

I have had very low white blood cell counts since 2004. Finally, saw a hemotologis in 2007 who diagnose MDS with Refactory Anemia.  I was advised no known cause and  and no cure.  I have not had a bone marrow biopsy. I am receiving supportive care only. Some research I've done indicated that my low wbc could be due to diurects--which I take.Does anyone have any info about this as a possible cause.

I would like to hear from anyone who have the same DX , and who may be receving treatment.  Thanks so much.

CJ2341

[CJ2341]

Thnak you for your interest.
Myedysplastic syndromes are a group of diseases that involve dysfunction of th bone marrow. This leads to the decrease of production of normal blood cell counts.  It is also called Myelodysplasia , Preleukemia, Subacute Leukemia, or Smoldering Leukemia. There are five types of MDS. I have the one kind called Refactory Anemia. Thirty percent of people with MDS develop AML.

This is a very brief summary.

[Dnmh]

This is something I'm not very familiar with. MDS is what? I have not heard of it so please forgive my ignorance.
Hopefully bumping this up will allow someone else to see this who may be able to answer.

I'll see what info I can find for you.