LIVER DISORDERS COMMUNITY
Does anyone know about porphyria?

Does anyone know about porphyria?

I am hoping that someone knows about porphyria testing and diagnosis.  I have read different things on the internet as to the accuracy of testing and wondered if any testing can 100% diagnose the disease.  I have had more than one attack with symptoms of porphyria but no one tested for it.  I have heard that the testing in between attacks may not show anything but maybe other tests for porphyrins in the blood or other can show up something when there aren't symptoms.  I really want to know what mystery illness I had.
Related Discussions
Post a Comment
To
Comment
Post A Comment
Go
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
MedHelp Health Answers
Submit
Top Digestive Answerers
1475202_tn?1327411873
Blank
rpooo
el paso, TX
Avatar_m_tn
Blank
mikesimon
1920353_tn?1337267768
Blank
EmmyJN
Waukesha, WI
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank