Gilbert's Syndrome Research- sufferers wanted

Hello,
I recently saw a specialist in Sydney (Australia) in regards to my Gilbert’s syndrome. (I have a range of symptoms which are very similar to those reported by other GS sufferers.)  I sought a referral to see this doctor specifically because he had co-authored a paper which put forward a theory as to what might be causing symptoms in some Gilbert’s sufferers. (Ie- As opposed to the mainstream “it is a benign condition” line)

He told me that he would be interested in following up his paper with clinical research, if he could get a reasonable number of Gilbert’s syndrome sufferers together, and asked me if I knew of any. I said I would post to some of the online forums and see what the response was like.

So- that’s what I’m doing! If you have Gilbert’s syndrome (and/or know of others), and are interested in being tested to try and further understanding about this condition, please get in touch with me by emailing me at :
s.h.***@****

The testing would involve attending a hospital/pathology lab in Sydney to have blood taken. Also, people with Gilbert’s who have few or no symptoms are just as useful for the purposes of this research.
If you email, It would be ideal if you could include your location, gender, age and a very brief description of symptoms…but those details aren’t crucial. At this stage I am just looking to see if I can drum up a statistically useful number of people.  Hope to hear from you!

[dav3090]

Hello
I was also diagnosed as a GS sufferer, but the doctors have told me that GS has no symptoms (except for Bilirubin). Since I suffer from several symptoms that the doctors can't explain, I would appreciate very much if you can tell what symptoms of GS are known or direct me to where I can find information.
Regarding the research, unfortunately I can't participate as I don't live in Australia.
Thank you in advance
David