I would like to know if any other readers have had an experience like mine. I started having pains in my side after eating dinner one night they continued on through the next day, I happened to have a Dr's appt that next day & I mentioned the pain I was having he thought it could be my gall bladder. Later that night (It was a Saturday)while laying down the pain started getting very intense and then I felt like somthing exploded (very painful) !! then felt something like contractions. I waited until Monday morning and called my Dr .. He sent me to the hospital thinking it was my gallbladder... after a sonogram,ct scan & MRI it was discovered that I had a Hemangioma that had ruputured and that was about it they didnt seem real concerned.I still experince some pain and it is going on 1 year ... Can this rupture happen again?
I don't understand why they weren't concerned? Didn't they think that could be a source of continuing blood loss if not surgically addressed? I have two hemangiomas on my liver & follow up imaging is planned. Hemangiomas are "tumors" that are networks of blood vessels, so with a rupture, one would logically think a repair would be in order! Did they explain their lack of concern?
No not really ..I was sent to a specialst who told me what it was because at that time my family doctor just knew that it was a mass on my liver . So the specialst told me what it was & asked if I had any questions .. at the time I couldnt really think of anything because I didnt know what a Hemangioma was . And that was about it. I had another MRI yesterday after telling my doctor last week that I was still having pain .
You need to talk to a SOCIAL WORKER at the hospital your Dr. works out of. Tell the social worker what your concerns are, and that you have lots of unanswered questions about how to Manage your health after your diagnosis. Tell her (or him) that you don't even really understand your diagnoses completely yet, and how you should adapt your lifestyle to it. This is EXACTLY what SOCIAL WORKERS in Hospitals are there for. Dr.s too often think that the healing "job" stops at "well heres yer diagnosis, have a nice McDay, please return if you have more questions we can make money from" I am here to tell you, whether you have the flu, or acute liver failure, Healing only STARTS when you have the diagnosis, you need someone to help you co-ordinate and manage the care and handling of your bodies new set of circumstances, Just like any other set of new skills, living with the new you, post diagnosis, is a process, give yourself some time to learn it, and a good teacher to walk you thru it. a SOCIAL WORKER Do whatever it takes to see one in the hospital your Dr. has priveledges at, usually this can be done for little or no cash investment, and if the social worker at the hospital says they cant see you, ask them to refer you to someone who can, dont leave their ofic or hang up that phone till you gat a face to face appointment with someone to help you co-ordinate your care. Use those words if you have to. And remember, its worth it, because it is YOU. YOUR health, YOUR body, and you are entitled to access to the information you need to live it the best possible life your body can. and never let anyone tell you otherwise. Good luck!
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