giant hemangioma

[cariad64]

Hi I'm so glad to find this site.
I have been diagnosed with 2 hemangioma,  10cm and 4cm.
I have seen three separate uk liver surgeons and been told that they will continue to grow and eventually rupture. They will give me another Mri scan next February to see the rate of growth. I was told due to high risk of morbidity then it's unlikely I will find a uk surgeon to operate,less than 1% of uk population have this and no records of any operations done in UK

Reading this amazing site where I see many of you have had operations.  
I can not cope with the pain anymore and my stomach is so swollen , I look 7 months pregnant.  I am often vomiting and now hardly eat as pain is so much worse. I am exhausted and feel very alone with this mass on my liver.

Can anyone help me and is there a US surgeon that can help me ?
I'm pretty desperate as symptoms getting worse.

Thank you

[fntn]

Forgot to add that I suffer from portal hypertension and ascites myself. The nausea, lack of appetite, GI pain and fatigue is something that I've dealt with as well. So you are not alone and we are here to help in anyway we can.

[fntn]

Can you provide us with more details? Have your hemangiomas started to obstruct your portal blood flow through your liver? You mention that your stomach is swollen and that you look pregnant. This seems to point to ascites, which is caused by portal hypertension.

In most people, hemangiomas are benign and can usually be dealt with by simply monitoring things on a yearly basis. But your case sounds very aggressive. Any additional details and data that you can share with us would useful and allow us to help you further.