my daughter has hep c, advanced liver disease....to much scar tissue to heal, and hepatic encephalopathy.
i am trying to find a specialist in the philadelphia area that would care for her, and put her on a transplant list.
is this possible with only madicare's access plus?
please, am i just wasting my time? she has been "clean" for almost a year. is going to mental health. had a tox screen that was clear of unperscribed drugs.
she is having so much pain from lactulose that she refuses to take it any longer. it's been 9 moths of agony for her on this drug. and she's not that much better anyway.
we really need to find a good doctor to care for her. i won't go into the horrible care she had been receiving.
please who do i call regarding this urgent problem?
what web site?
You may already have this information, but if not here it is.
American Organ Transplant Association: (281) 261-2862
American Liver Foundation: (800) 465-4837
National Transplant Assistance Fund: (800) 642-8399
National Foundation for Transplants, Inc. (800) 489-3863
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