LIVER DISORDERS COMMUNITY
porphyria????

porphyria????

Hi

Last year in April I was diagnosed with severe gastritis and I did everything I could so that it would repair. Then I started to get sick again. So this year in April I went back to hospital and thought that my gastritis had gotten worse. I was in hospital for two weeks and the doctors couldnt figure out whats wrong. They did find something that showed up in one urine sample which is related to an illness called porphyria but they didnt follow thru with it as it only showed up that one time. I found out that my gastritis was all healed as well which is great. I have a lot of symptoms and was wondering if anyone one is in the same situation as me.

I am always feeling sick. And if im not sick with this im getting a virus or a cold as soon as i am in contact with someone else that is sick. My immune system is terrible

my symptoms are

Stabbing sharp pains in the top of my stomach and chest
Nausea sometimes leading to being sick after eating
Pain in my right side and back
aching in different parts of my body at different times so far arms, legs,back
headaches
always feeling gluggy and gross
always tired
easily bruise
sometimes getting a uncomfortable feeling
sore bone pain
smelly urine (when im really sick)
shakes
fever
itchy skin sometimes
broken sleep
short term memory loss
emotional

also i toss and turn alot in my sleep and jolt
dehydrated
sweating
body twitches
change in urine colour to like a darge orange/red
urinating alot


also when i drink alchohol or eat junk it sets of like an attack of me being sick for weeks

thats all i can remember so far.

I had about two months this year where i was ok i still felt it a little




Tags: porphyria
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