No facial flushing, weight loss (assuming to be from the diarrhea and vomiting and not being able to eat). Good luck to you and your daughter, She is very lucky to have a mother who deeply cares enough to look for answers herself!
Do you have facial flushing and weight loss as well? My daughter has been suffering from this and more for a long time and now has lost 15 lbs since July. She has a 1.3 cm nodule in her left lung, goes for repeat CT on Thursday.
I can't help you with your question but wish you the best.