Lupus, Fibro, Antiphosphpolipid Antibody Syndrome and other Autoimmune ...
Fibro, lupus- hereditary?
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Have autoimmune diseases such as Lupus, Antiphoshpolipid Antibody Syndrome, Fibromyalgia, Reynauds, and others seemed to have stopped your life in its tracks? Do you just need an outlet? Would you like to share your story or draw on the experiences of others? This is the place for you. No negativity will be tolerated. Only support, respect, and healing found here.

Founded by rooroo41 on February 27, 2011
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Fibro, lupus- hereditary?

Does anyone else have more than one generation in family of fibro, lupus, or other rheumatological problems?

I was diagnosed with fibromyalgia 11 years ago, lupus about 7 years ago (and I also have several other serious health problems).   The worst thing I have to go through is knowing that my son, 11 years old now, has had fibro since he was 7 years old.  I know it is rare for children and doctors don't like to diagnose children, but my son has all the symptoms and I think it is genetic because he experiences the pain how I do and the pain, weakness, and muscle cramping/tightness in the same areas of the body as I do.  First doctor he went to thought he was just copying me but I was/am very careful jot to complain and describe my pain to my children- I try not to let on I am in pain or what my health problems are.  

For a while my son also had ANA's in his blood and had autoimmune problems, in ER a lot and was diagnosed with lupus.  But now no more ANA's and immune system has been doing well(thank god) for last few years so doctor now says was not lupus.  I really hope this is the case!  I am worried, however, that he may have further problems in future because when I am stable, doing well on medication, and no serious autoimmune problems the ANA's leave my blood too.  (By the way, does this happen to anyone else?)

I once asked a doctor about lupus &fibromyalgia being hereditary and he rudely looked at me and said, "That's not what's going on, they have done all kinds of studies about that and has only been found to be hereditary in Turks!"  Well, hello...... I am half Turkish!  But I have heard other stories of fibro running in families.  Another doctor told me that families can be predisposed to it.  

Thanks for listening, and good to meet you all!
2 Comments
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8713268_tn?1399468125
21tulips, I was diagnosed with lupus 10 years ago. My ANA and skin factor came back positive. I have been on steroids, plaquinel and many other medications to help. The fact is, if your on medications such as these, the ANA factor will come back normal. Even on steroids. It takes about 12 months for the tests to come back showing an ANA factor of lupus, or other auto immune disorders, once off the medications. I was told, once you have a positive ANA, you have lupus, even if the test comes back negative for years and years. Lupus is a disposition geno that we carry, this does not mean you will give your child lupus, it just gives him a higher rate of developing this and other auto immune disorders. My eldest son has raynauds and IBS. Both are auto immune disorders. If he mates with another that carries the disposition geno of lupus, more than likely their child will develop lupus. Research is showing more clearly now than ever, that doctors can not go by just test results and that family history is a big factor for all auto immune diseases. I am actually having my children tested by a genetics dr, to see if they all carry the dis positional geno's.
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8713268_tn?1399468125
I did forget to mention, that I too have fibro, with my lupus, I also have raynauds, neuropathy, deteriorating disc disease in over half my spine, I have osteoarthritis in my left hip and knee, daily muscle cramps and spasms GERD, IC of the bladder, anemia, photo sensitivity to sun and ultra violet lighting, I have had retina bleeding in my left eye and loss of vision caused by permanent damage to the blood vessels in my left eye. If I get stressed I loose my vision, have even gone blind for a few minutes. I am fatigue all the time, get daily chronic headaches and migraines. I have loss of memory, and I get ill all the time. I have had pleurisy, vertigo, kidney infections/stones, Asthma, COPD, nodules in my lungs, you name it these are a factor in my life.
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