5 plus years of fear,uncertainty, pain, hospitalization
I will briefly relate events beginning in Dec 03-I get jogged from one to another doctor, and I cannot take much more
Dec 03--Walked into ER (but driven by friend) pausing every second --to breathe
Upshot: hemo of 4.5/ transfused/ no diagnosis
July 04-Carried into ER-- I had collapsed--hemo 6.5/ "acute respiratory failure" (multilobular pneumonia)
Summary: more transfusions--last in May of 2007
Scopes, pill cameras, barium series (repeatedly) disclosed no specific bleeding site; could reasonably infer that blood coming from small bowel, colon, rectum (I at this point thought of vasculitis)
Still seep blood--or find black "clots" in stool-hemo is 2 "points" fewer than my normal adult, but it is not a problem
IN July of 05--I had shingles; immediately followed by what was diagnosed as being sebboreahic derma on my scalp and also 3 curious coin shaped lesions on upper arm-linear,same-size but erupted spontaneously and burned
IN the following months I developed lesions on my legs that bled spontaneously; then purple mottling on knees and purpura on weird places like mid-neck. But these eruptions were widely apart in time.
But only in the last 4 months has the skin been almost consistently afflicted. REd spots under skin; subcutaneous nodules (often painful) on both hands. On legs and kness very small lesions, but if one is sim,ply rubbed, it bleeds profusely. In fact, whole leg and now arm will turn flaming red if merely patted gently with cloth.
Christmas 20008-At about 5 PM I began having such pain in and down my left shoulder, I was screaming, I did not want to go to ER b/c unless I needed a transfusion, they could do nothing and looked at me as tho I were a wild woman. (EX_Stood up at home one day took 1 step and all was going black--I managed to call 911-but was in and our of it for hours--and pretty disoriented)
IN last5-6 weeks one after another joint has made itself known with pain and a bulge.Now I had--overnight--developed arthritic joints one after another. That these nodes were arthritic were confirmed but unexplained by a "specialist."
This last week-end, black out and simply falling down. Small cerebral hemorrahge? Well, where now?
I have only weak pos ANAs.
But blood keeps coming from everywhere--first bloody nose in life, inflamed urether (blood in urine very evident)
Family not supportive...
Does this SOUND like SLE or should I be looking elsewhere? I am very depressed.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.