Feeling hot without real fever??

Hello, all.  I have been dealing with autoimmune issues for about 15 years now.  I never got a formal diagnosis of anything other than fibromyalgia.  I've always tested negative for the lupus antibodies, though have had ANA's as high as 1280 and as low as 40.   I am on plaquenil and every now and then steroids to get me through some of the rough patches.   I wondered if anyone gets bouts of feeling hot/inflammation all over when going through a flare?  Not really a fever, per the thermometer, but just feeling like you have a fever? I don't really know any good way to describe it.  I feel achy and hot all over, my skin is hot to the touch , and sort of flu-like, but the thermometer always registers as no fever.   Anyone else?

[Caryopteris]

It could be hormonal.  If you don't react to soy and don't have a high risk of breast cancer, you could add a soy supplement.  They don't have a lot of evidence as to whether this raises any health risks or not, but some people get help with the slow drop of estrogen of perimenopause or actual menopause.  

Or it could be your thyroid.  There is an autoimmune thyroid condition.  

Have you been checked for Celiac disease?  If you have it, you need to get off gluten to stop the addition of more autoimmune diseases and cancer.  

[whatdabuck]

This happens to me all the time! I have lupus and I always feel like I'm running sporadic fevers but when I take my temp. it always says normal. I've also had my temp dropping low to 96 degrees and I feel really cold and achy. No one could explain why to me and said it was nothing to worry about but it's really uncomfortable. Just got dx w/ hypothyroidism though which could cause it. I'm unsure of whether the meds are helping yet since I haven't been on them for long but they might work. If you haven't already I would get your thyroid checked.

[mochamommy0816]

Thanks, Caryopteris.  I am 45 years old and think I am either in or close to perimenopausal status.  I do not have any reactions to soy nor am I at high risk for BC, sooo..........this is something that I will look into!  I hadn't really thought about it being perimenopausal-related, but I am open to any and all ideas! Thank you for the suggestion and insight!

[mochamommy0816]

Forgot to say......I have not been tested for celiac disease.......in fact, I don't know if I know what that is! Looks like I have some homework to do :)) BTW, I have been checked for the thyroid, so I'm good on that one!

[mochamommy0816]

HI, there! Yes, I have had my thyroid checked, so I know it isn't that.  It's just really ODD because I feel achy, feverish, etc., but then the thermometer just registers a normal temp!  I do get cold very easily when I'm not going through these feverish spells, lol, though I've learned that it is probably due to a newly diagnosed iron deficiency/anemia.  I am just really out of whack! I do really want to learn more about these so called 'fevers' just because I really feel sick when I get that way just like I would when I have the flu.....can sometimes knock me out for days!

[bamabred]

HI, i thought i was the only one going thru that,feeling hot flush,i thought it was in my head as the dr seem to think,once again he was wrong (image that).

[karajo]

I too have lupus and have the same sensation.  I asked my Primary and he said lupus can cause inflamation (inflammation) in the vascular system, thus causing a flushing sensation.  I also have the feeling like I am running a fever, along w/ the aches and headache that accompany a fever.  Sometimes I actually am running a low grade.  If you temp seems to run low to begin with, then you could actually be running a temp.  

[geminigirl1963]

Yes, I also get the feverish feeling quite often when I'm in a flare.  I do sometimes actually run a fever during these times, but there are others when I only FEEL like I'm running a fever - I'll get that hot feeling, my face will sometimes get flushed (not always), my eyes will burn, I'll feel achy all over.

My "normal" temp runs pretty low - on average about 97.4 -- so even when the thermometer reads 98.6 - 99, it really feels higher to me.