Aa
Feeling hot without real fever??
Hello, all. I have been dealing with autoimmune issues for about 15 years now. I never got a formal diagnosis of anything other than fibromyalgia. I've always tested negative for the lupus antibodies, though have had ANA's as high as 1280 and as low as 40. I am on plaquenil and every now and then steroids to get me through some of the rough patches. I wondered if anyone gets bouts of feeling hot/inflammation all over when going through a flare? Not really a fever, per the thermometer, but just feeling like you have a fever? I don't really know any good way to describe it. I feel achy and hot all over, my skin is hot to the touch , and sort of flu-like, but the thermometer always registers as no fever. Anyone else?
I am a 47 year old male, hot to the touch my palms are so hot they are constantly red, 4 weeks ago on my way to work I threw up in the car, since then I have had test after test after test it reveals nothing. In my early 20's I started to have joint problems not due to sports, I have had 6 operations on each knee and both my elbows are in pain and now my left and right hip has started to get sore, One day I can walk for miles the next not even 100 yards. The thing that bothers me the most out of these 27 years of suffering is the the heat my body is producing and it's now getting worse and affecting my work I have now been off 4 weeks, my sister has fibromyalgia and 2 of my nieces have hyper mobility syndrome and 1 has lupus. I have suffered the the hot temp with no temp coming on 30 years and no one has answers but other that I feel good no headaches just joint pain and feeling hot so hot the bed needs changed every day and a new pillow, I buy pillows by the bucket load and new mattress protectors.
Have had same symptoms for years. For me, it is fibromyalgia. Be prepared to hear some Dr's say it doesn't exist. Imagine all these millions of us fakers with the same complaints!
OMG......I'm going through this. Just turned 47. Hot with no apparent temp. Achy, and headaches. I had full blood workup in March with nothing out of the ordinary and it's not going away. Not sure how much more I can handle....No wonder guys think we are nuts!!!! If this is peri-menopause, I would rather have my monthly till the end.
Same, been living with all these symptoms off and on for years. Miss some really important things. In the last couple years I have to sleep with a fan on so I can breath. The pain, the nausea, feeling like flu, waking up feeling terrible, not being able to sleep, face hot but temp "normal". Tired but can't sleep sometimes, and sooo sleepy hours and hours too much sleep others, even sometimes can't make it to work. So tough to live a normal life! Easy to say fibromyalgia or thyroid, but it's lazy non-technical doctors. Thyroid tested, not an issue. Basic blood levels/cholestoral tested. Chest xray normal. Hormones were supposed to be tested but I haven't yet. Pretty healthy and athletic, when I'm "normal". Can't think when it's too hot or too cold, trouble focusing, weight gain10 lbs each time in 6 mths or less, as I try to eat myself into feeling better. :( (thinking it's like lack of some vitamin) I've tried to stay away from the gluten too, but haven't really seen it as the cure, but maybe haven't stuck to it long enough. . I understand thinking depression, but it comes and goes, seems to have no rhyme or reason, but when life is challenging, its harder to fight it off. Exercise whenever you can, even when you can't, it will help. Hope we all find a "cure" for this, makes me want to be a doctor. Docs! Someone look into this, so many of us. :( The "popular" Dx these days is Chron's, Lupus, Thyroid, Fybromyalgia, and Diabetes in the past, but .. How about real proof of a "root cause" ?? It can't be that difficult to locate the problem and manage with diet & exercise (medication as a last resort). Wish I was a research doctor...pattern recognition.
Hello everyone. I want to say how very much I am releived in a strange sense to see your comments, but especailly mochamommy0816 :) I have been getting MOST of those symptoms for YEARS, but it seems this 8 months or so, it's worse. You are so correct in saying it's like attacks or waves that occur. I can be doing wonderful for a long period of time, then ..BANG!! It's concering me because it has been happening a LOT more frequently these past few months and it takes me what seems to be forever to get better. I have been tested for thyroid issues, anemia, Lupus, etc.. and NOTHING,which I am grateful. I;m so tired of feeling like this. The MAIN thing you mentioned was feeling like you have a fever but you do not. I feel EXACTLY that way. Here lately it's been a lot of headaches, which I have EVERDAY since I was a young girl, but they are worse and different. I have NO energy and just an overwhelming feeling of feeling bad. I guess it would be similar to a FLU, but milder maybe. I HAVE however noticed that when I have extremely stressful situations, ( which I have been dealing with for years) but. more lately. It seems to make my body go out of wack easier now and takes me FOREVER to start feeling (normal) again. I'm just so disheartned, fed up and almot embarrassed. My family always ask.. (what is wrong now)?? :( *** It' upsets me so much to feel like this and I don't know what to tell anyone anymore. Thank you all for not making me feel so alone.
1 Comments
Have you ever found an answer? I hope so. I'm still searching for an answer to waking up feeling like my insides are on fire, especially in my chest and upper back. It goes away mostly when I move around for 30 minutes or so. So many people describe this and yet no one has an answer...incredibly scary and super frustrating that no one has a clue wth this is.
I have the remedy for you it
doesnot harm you taking it and read the reports from the netu
i take daily 20 seeds mornings and chue them with 10mg zestoric and my blood pressure is very stable since then. I hope that you all God wills be much better
Searched the internet and found some references from your world and mine
https://www.diamondherbs.co/101-black-seed-oil-benefits-to-consider-while-undergoing-lifes-wear-tear/
http://www.m.webmd.com/vitamins/ai/ingredientmono-901/black-seed
http://www.greenmedinfo.com/blog/black-seed-remedy-everything-death
doesnot harm you taking it and read the reports from the netu
i take daily 20 seeds mornings and chue them with 10mg zestoric and my blood pressure is very stable since then. I hope that you all God wills be much better
Searched the internet and found some references from your world and mine
https://www.diamondherbs.co/101-black-seed-oil-benefits-to-consider-while-undergoing-lifes-wear-tear/
http://www.m.webmd.com/vitamins/ai/ingredientmono-901/black-seed
http://www.greenmedinfo.com/blog/black-seed-remedy-everything-death
If you are hot to touch-to other people and feeling unwell, especially on a background of query lupus I'd be looking hard at autonomic dysfunction. This can cause the blood vessels to get it wrong and send blood to the wrong areas, so you will feel hot to touch but not actually have raised body temp. Check out autonomic neuropathy/dysfunction and postural orthostatic tachycardia syndrome for starts. When it happens get doctor check lying and standing BP and also heart rates (PoTS!!) to look for abnormalities.
I felt exactly this way for many years and always tested negative for lupus. I knew I had it though no way I could mirror all those symptoms and not have it. Finally at age 50 had positive ANA saw a specialist and he took one look at mtgy red rash on my face and with my history which is same as yours diagnosed me w lupus put me on plaquenil and even though I still don't feel great I feel like I can deal with it. I can atleast now get out of bed for parts of the day. Keep getting labs done each year.
Crazy but chewing 2 nausene tabs OTC really helps me. I have lupus and I can't even begin my day until 4 or 5. Early in day feel like crap!
I use to feel like this all the time! Had positive ANA based on labs and history just like yours I was diagnosed with lupus. Been on plaquenil for almost two years now and the fevers and chills are less frequent. Still have bad joint pain but take low dose OxyContin to control pain. I am overweight so I don't do steroids. I applied for disability and was approved immediately no lawyer needed but now I'm bored and depressed I hardly eat but still don't lose weight. I digress, along with your symptoms I have frequent headaches and a few itchy scalp sores that have gone away now. I remember now that I have had symptoms my whole life but as a kid and teenager you can fight through. I'm 52 now and it got the best of me.
Found this thread while doing research on my own feverish feeling. I have dealt with and known others who have several of these complaints. MiniDog47, your comment caught my eye because of the insect bite experience which was the clue I was looking for in all of these comments and you recommended the same thing I was going to do...GET TESTED FOR TICK BORE DISEASES, Lyme and Ehrlichiosis are the two I have recovered from and dealt with for over 15 years. As of 2015 There are 14 and (new ones found often) other diseases related to tick bites listed at the CDC (Center for Disease Control) web site,,, I have done tons of research into this since 1980 when a wild wolf cub I received from Alaska in Tx came down with Lyme disease at 4 years old. The only thing wrong with the wolf was a nose bleed 4 animal hospitals could not stop and finally a young intern took the time to look more closely at the blood samples and found the Lyme Bacteria, started the wolf on antibiotics and the nose stopped bleeding within a couple of hours. The wolf died of failed kidneys a year or two later and had appeared healthy at 200 lbs until the day then. The veterinarian in 1980 told me to go see our family doctor, to warn the doctor the lyme disease could spread to my children very easily and when I did the family doctor laughed, saying we lived in Tx not Co where you get rocky mountain spotted fever. I showed him the animal health book the vet had underlined the lyme disease is transferable to man but the doc would not listen and now 30 plus years later these diseases are epidemic in several states and the testing is non-conclusive, often positive/negative results because it has been recently discovered the bacteria actually hides inside our DNA where it will lay waiting to strike weakened parts of the body, or for other germs to invade then it attacks the germs which causes the horrible symptoms. Also recent research by scientists has found that fleas,mosquito and ticks carry many of these bacteria...therefore the findings suggest we may not need to of been bitten by a tick only. As for cures, good luck convincing a doctor that this is not one of the common illness in these comments(although it is) all of the illnesses mentioned here have been found in persons who first have had tick diseases. You may want to watch a documentary about the Plum Island Experiments also. Good Luck everyone ! Herbs work for me, Garlic is the best one yet.
I meant to post this link about IC, too:
http://en.m.wikipedia.org/wiki/Interstitial_cystitis
Regards,
C
http://en.m.wikipedia.org/wiki/Interstitial_cystitis
Regards,
C
Long term antibiotics are not a standard treatment for IC...because there's no infection present. It just FEELS like you have a horrible UTI.
IC (Interstitial Cystitis) is not curable, but it can be managed. Sometimes easier managed for certain people. Unfortunately for me, I'm not one of them.
I tried Elmiron, both orally and I went to my Drs office every week for 16 weeks, had bladder instillations via a catheter, then had to try and hold the meds in for at least 1 hour. Being cathed every week was so not fun. After all of it, all I had to show for it was my liver enzymes dangerously increased and among other issues I had increased stomach pain. So no more Elmiron or caths for me.
In IC, the Glycosaminoglycan (GAG) lining of the bladder is damaged. This lining is what helps protect the bladder walls from inflammation and infection. My Urologist describes it basically like this: Say you have a wooden chair out in the elements. Bladder=chair. Paint/sealant=GAG lining. So if you have a wooden chair outside and it's not got any type of paint sealant or protective coating, the sun, rain, wind, snow, hail, etc are all eventually going to ruin the chair.
With IC and the GAG lining of the bladder being defective, everything we eat and drink can get to the bladder walls since the GAG lining isn't working. So spicy foods and acidic foods can really cause a lot of pain.
Before I was diagnosed, I'd had a lot of kidney stones (unrelated), and it seemed like I had a constant UTI. Dr had me on antibiotics (even though urine showed no infection), and of course the antibiotics caused yeast problems. I was also drinking cranberry juice like crazy. And my bladder pain and pelvic floor pain were terrible.
Turns out cranberry juice is great to try to prevent a UTI...but it's terrible for a bladder that is affected with IC.
My formal diagnosis is MCTD (mixed connective tissue disorder). Rheumatologist says most likely I have Lupus and Sjogrens.
I sometimes have the hot burny "feels like my skin, eyes, throat are on fire" feeling. Usually I'll have increased stomach and pelvic pain as well. My Rheumatologist has said more than likely it's a Lupus or Sjogrens flare. I take Plaquenil daily, and if I'm feeling "flarey" the Dr gives me a steroid shot, and or I'll take a short dose of steroids. For the burny hot feeling I take ibuprofen. Sometimes it helps, sometimes not...
Regards,
C
IC (Interstitial Cystitis) is not curable, but it can be managed. Sometimes easier managed for certain people. Unfortunately for me, I'm not one of them.
I tried Elmiron, both orally and I went to my Drs office every week for 16 weeks, had bladder instillations via a catheter, then had to try and hold the meds in for at least 1 hour. Being cathed every week was so not fun. After all of it, all I had to show for it was my liver enzymes dangerously increased and among other issues I had increased stomach pain. So no more Elmiron or caths for me.
In IC, the Glycosaminoglycan (GAG) lining of the bladder is damaged. This lining is what helps protect the bladder walls from inflammation and infection. My Urologist describes it basically like this: Say you have a wooden chair out in the elements. Bladder=chair. Paint/sealant=GAG lining. So if you have a wooden chair outside and it's not got any type of paint sealant or protective coating, the sun, rain, wind, snow, hail, etc are all eventually going to ruin the chair.
With IC and the GAG lining of the bladder being defective, everything we eat and drink can get to the bladder walls since the GAG lining isn't working. So spicy foods and acidic foods can really cause a lot of pain.
Before I was diagnosed, I'd had a lot of kidney stones (unrelated), and it seemed like I had a constant UTI. Dr had me on antibiotics (even though urine showed no infection), and of course the antibiotics caused yeast problems. I was also drinking cranberry juice like crazy. And my bladder pain and pelvic floor pain were terrible.
Turns out cranberry juice is great to try to prevent a UTI...but it's terrible for a bladder that is affected with IC.
My formal diagnosis is MCTD (mixed connective tissue disorder). Rheumatologist says most likely I have Lupus and Sjogrens.
I sometimes have the hot burny "feels like my skin, eyes, throat are on fire" feeling. Usually I'll have increased stomach and pelvic pain as well. My Rheumatologist has said more than likely it's a Lupus or Sjogrens flare. I take Plaquenil daily, and if I'm feeling "flarey" the Dr gives me a steroid shot, and or I'll take a short dose of steroids. For the burny hot feeling I take ibuprofen. Sometimes it helps, sometimes not...
Regards,
C
Hi, have you looked at the fibro web pages to see if you have any of the symptoms, as they may just be looking for a label... check the websites mostly the facebook ones are great and can help and advise..... Dont just put a label on it make sure you know.. Karen
Did you ever find out what was going on? I have the same symptoms you have described but inconclusive tests.
I suspect that my hot, red forehead; flaky facial skin spots; ringing ears; & hot torso & head with no fever whatsoever..... may be due to taking WARFARIN too long.... also known as COUMADEN.... also used as RATPOISON in high doses... Doctors like to put you on Warfarin for 6 to 12 months at a time if you have had some major trauma, just in case you may develop a blood clot. I had dark spots on my lower legs from trauma (which indicate poor circulation), even before I broke my Tibia & had an operation to put cadaver bone & titanium plate in. They made me inject Enoxaparin sodium, (aka. "pig bowel mucus" ) into my stomach for several weeks. I took several antibiotics both intravenous & pill, though I had already had been taking some for a bad case of leg cellulitis (due to not immediately treating a deep leg scrape while having my poor circulation).
I was prescribed Warfarin for 6 months, but after 4 months the symptoms of extremely hot skin, loud ringing in ears, flaky face, & red forehead began.
I stopped the warfarin for a couple days & the symptoms abated quite a bit.... then I started the warfarin up again several more times upon which each time the symptoms came back with a vengance.... I stopped taking Warfarin & started taking a low dose aspirin which is probably what mostly should be prescribed, if indeed the Warfarin (rat poison) is what is responsible for the symptoms. Just now I had a relapse & had to put ice on my eyes, nose, forehead, back, arms, & hands: as I have to do at least once a da!. It could perhaps be Manopause as my VA doctor suggested, but I bet Warfarin was never as thoroughly tested as it should have been! Any one else have this happen?
I was prescribed Warfarin for 6 months, but after 4 months the symptoms of extremely hot skin, loud ringing in ears, flaky face, & red forehead began.
I stopped the warfarin for a couple days & the symptoms abated quite a bit.... then I started the warfarin up again several more times upon which each time the symptoms came back with a vengance.... I stopped taking Warfarin & started taking a low dose aspirin which is probably what mostly should be prescribed, if indeed the Warfarin (rat poison) is what is responsible for the symptoms. Just now I had a relapse & had to put ice on my eyes, nose, forehead, back, arms, & hands: as I have to do at least once a da!. It could perhaps be Manopause as my VA doctor suggested, but I bet Warfarin was never as thoroughly tested as it should have been! Any one else have this happen?
My symptoms are just like what you've listed. Do you get a crippling fatigue along with the low grade fever? I also have a weird rash on my arm (elbow). I haven't went to the DR bc we are getting ready to move back to NC so I thought I'd wait. But I'm a little freaked out. Maybe it's all hormonal?? I don't know. Some ppl don't believe me bc I look good, or rather, not sick enough.
I think there is much truth to this! I agree 100% that this could very well be a huge part of why so many people are being diagnosed with these types of conditions! or being misdiagnosed period. I think it is becoming an epidemic and what would the doctors say if we even mentioned CHEMTRAILS? They would tell us to take off our tin foil hats! I have been blaming it on CHEMTRAILS for awhile now, I suffer with flu like symptoms 24/7. They have diagnosed me with so many conditions now I have lost track. I truly feel for you all, and sure hope we can get help soon! I also want my life back!
I think there is much truth to this! I agree 100% that this could very well be a huge part of why so many people are being diagnosed with these types of conditions! or being misdiagnosed period. I think it is becoming an epidemic and what would the doctors say if we even mentioned CHEMTRAILS? They would tell us to take off our tin foil hats! I have been blaming it on CHEMTRAILS for awhile now, I suffer with flu like symptoms 24/7. They have diagnosed me with so many conditions now I have lost track. I truly feel for you all, and sure hope we can get help soon! I also want my life back!
Ditto, I could not have said it better! People think I am the luckiest person in the world but they would not last a day in my shoes. For me the waves of pain/worst fever breaking feeling is daily and you explanation of stressful or when I have to do physical work, it seems to be all day long. Like my thermostat is out of whack so I've been in bed for a little over three years. The hormones I take have helped with the pain and I an having about a 15-30% reduction in the events but that is because the hormone cream I can only take every other day! there are days that I'd like to fill my syringe with Premarin and use the whole tube! Stop the insanity and until I found this board, I'd thought I was half crazy! My Husband is so understanding, am I a lucky lady <3
Everyone thinks I am 27 or maybe 32, I am 51. There has to be something that is wrong with me because I have a number of diseases including Interstitial cystitis, Ancyolosing spondylitis, Reactive Arthritis, Fibro, two thyroid cysts, my thyroid seems normal but a little hyper, my bowels don't move but I got put on pain meds for my arthritis's, began having nausea so the dr kept raising my pain meds til one day I was told I was on the second highest dose in the State. Lost over 120 lbs and got off the meds because I was given Remicaid treatments so I didn't need the pain meds but had a tripple bypass at the age of 47 (three <3 attacks, now a bad heart)' most likely I was told from the number of drugs I've been put on. Had to go to my Dr. And tell him I could not take the burning, it was like breaking a fever and it seems to happen often throughout the day. Also I had hurt my leg and there was a crushed bone that never healed, I was mostly in bed for three years until my dr put me on A low dose of Premarin and Progesterone. This I had to beg for because of my heart issue but I could not handle the constant "breaking fever" feeling and sweating if I had to walk or stand for a few mins. Now that I am on the hormones my leg seems to not hurt and I hope the darkened area won't show up on the X-rays like it has for years. I'm out of bed but it's sill the breaking a hard sweat feeling that is really a painful feeling, it makes me think I'm going insane because all this going on is too much. Though an endocrinologist is running blood tests but I don't know what for? Also I have an appt. with him in a week or two. Honestly I'm praying it's not Lupus, but a distant Aunt had the disease. At least I am out of bed. People at my church think my life is perfect and that I am not really sick, they say you look so cute and you are so lucky things are easy for you. What they don't know is I eat between 500-600 cals. A day and still can't seem to get off the last 70 pounds. What ever could this be! They say it is not my thyroid?
Is it all over your body or in spots?
I have had this since I was 45 and I am 61 now...I do not test pos. for Lupus but Drs say I have it. The only med I have found , and I have been on a lot , is Ultram....does not work for a lot of people but it does for me....the pain I have , the feeling sick all the time like you could throw up...muscle aches, no sleep...feels like your body is burning on the inside all the time...If you have not tried it ask your Dr. about it....I have tried so many meds. I am in constant pain.....but with the Ultram I can function some ...so I wanted to suggest it ....anything that may help...I feel for all that have this.
Hello, out there I have the exact same issues I bounce up and down and go from feeling good to crappy to ok and back again. I never know how I am going to feel and it is effecting my sanity. I have been diagnosed with lupus, chronic fatigue pots and fibromyalgia. My quality of life ***** I stopped working carry water and sugary items with me everywhere I go and stick close to home as I never k ow how I will feel. Any suggestion on how to live like this?
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