LUPUS COMMUNITY
I am almost 100% sure

I am almost 100% sure

I broke out in the butterfly rash last year, I have always had problems with my joints etc. I am almost certain that I have it, with my actual doctor saying he knows I have it but won't diagnose or do the test until I get insurance so that I can not be denied.

How did you find out.
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Before you go any further, have Lymes tests done through IGENEX .  VERY possibly a Lyme infection .  researchers are finding it's not just tick borne and it's the fastest vector borne disease in the world today.
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I know with each person the dx process is different.  I know I knew and my GP knew before a dx was made.  For me it was a series of putting together little puzzle pieces.  Because the symptoms would come and go and were usually not at the same time, then I would have a day when I felt pretty good.  

But I had fatigue, joint pain (all over my body), malar rash when exposed by sun, swollen joints, diarrhea, red and inflammed eyes, nausea, tachycardia, low grade fever, flank pain (don't know if this is lupus relatd), elevated ANA (1:2,560).  These are the ones that come to mind.  I've been on Palquinel since July '08. What a difference that has made!
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