LUPUS TOO???

HELLO EVERYONE...I AM CURRENTLY HAVING SOME NEW SYMPTOMS THAT I AM UNSURE ABOUT AND WOULD LOVE SOME INPUT, THAT BEING SAID I APOLOGIZE IN ADVANCE FOR THE LENGTH AND COMPLEXITY OF THIS POST!!! NOTHING IS EVER, EVER, EVER SIMPLE WHEN IT COMES TO ME!!! :'-(
I AM A 37YR OLD AFRICAN AMERICAN WOMAN. I WAS DIAGNOSED IN 2002 WITH FIBROMYALGIA AND RHEUMATOID ARTHRITIS IN 2008. I ALSO HAVE A HISTORY OF NON-DIABETIC PERIPHERAL NEUROPATHY WHICH CAUSES ME TO HAVE INTERMITTENT BOUTS OF PARALYSIS FROM THE WAIST DOWN, THESE EPISODE HAVE BEEN GOING ON SINCE 2004 AND STARTED OUT BEING DIAGNOSED AS GUILLAIN-BARRE. THE SYMPTOMS I HAVE EXPERIENCED WITH THESE ILLNESES ARE MUSCLE/JOINT PAIN, PAIN IN ALMOST ALL POINTS RELATED TO THE FIBROMYALGIA, FATIGUE, INSOMNIA, MINOR MEMORY ISSUES/BRAIN FOGGINESS, NAIL BEDS TURNING BLUE DURING COLD WEATHER, CHRONIC BACK PAIN AND PINCHED NERVES/PAIN.

ABOUT 3 MONTHS AGO I STARTED GRADUALLY NOTICING NEW SYMPTOMS THAT I'VE NEVER HAD BEFORE IN RELATION TO THESE ILLNESSES, THESE NEW SYMPTOMS INCLUDE: MORE PRONOUNCED JOINT AND MUSCLE PAIN ESPECIALLY OVER THE THIGH MUSCLE, SWELLING OF FEET AND LEGS, FEET/HAND TURNING SEVERELY BRIGHT RED AND PAINFUL, THICK, BLOTCHY RASH TO HANDS WITH EMPHASIS OVER THE KNUCKLES, PAINFUL AREAS ON THE SCALP, HAIRLOSS AT THE PAINFUL SCALP SITES, INCREASED BLURRED VISION WITH SWELLING UNDER THE EYES, SEVERE INCREASE IN FATIGUE WHERE I'M EXHAUSTED ALLLLLLLL OF THE TIME, EYE PAIN/SENSITIVITY TO LIGHT/SUNLIGHT, DIZZINESS, INCREASE IN HEADACHES AND BACK PAIN, MORE PRONOUNCED MEMORY ISSUES(COGNITIVE/LONG TERM), KIDNEY PAIN AFTER URINATION WITH RED BLOOD CELLS IN LATEST URINE SAMPLE, PAIN/INABILITY TO TAKE A DEEP BREATH, RED AREAS/RASH TO CHEEK/UNDER EYE AREA WITH MINIMAL SUN EXPOSURE, SEVERE BURNING SENSATION/PAIN TO ALL SKIN WHICH IS SEVERELY WORSENED BY EVEN THE MOST MINUTE SUN EXPOSURE. I HAVE HAD SOME TESTING IN THE PAST FOR LUPUS WITH NORMAL RESULTS. I HAVE MADE MY PCP AWARE OF ALL OF MY NEW SYMPTOMS BUT HE STILL BELIEVES THAT ITS NOT LUPUS. WHAT DO YOU GUYS THINK? I'M AT A LOSS

[mollyadelaide]

Ok I cannot give you a thorough answer, but I just wanted to say I do sympathize with you. You may want to check in with the arthritis community too to see if these symptoms could be typical of your RA. I can tell you that I actually have or do experience some of those symptoms you listed too and I was dx with RA 16 years ago (but then told maybe not, they're not sure). I have wondered about lupus also but my testing never indicates it. The more I've learned about RA the more I've realized it is systemic and does effect more than just joint pain. But also too it is common to develop other autoimmune diseases going on along with your primary one.
Just wanted to specifically mention, the red and painful hands/feet sounds like raynauds, one rheumy told me that rash over my hand knuckles was due to sjogrens (but another said no), the scalp pain you may want to ask about giant cell arterioritis (I get painful scalp/temples and I looked this up but haven't asked about it yet though), I think you could ask about getting a biopsy where the hair loss is, probably should see an ophthalmologist to rule out uveitis for the eye pain or if you're on plaquenil to rule out complications...

[feeathome]

I hav had lupus for 10 years, but pretend I dont have it.(in my thoughts I dont). My skin burns all the time.. Especially down my back, an shoulders. I feel like I'm sevely Burnt. Pins an needles that actually "hurt". it keeps me awake. anything I can take for it, an does anyone else hav these symptons. thankyu