1. malar rash over cheeks (butterfly rash)
2. discoid rash, red raised patches
3. photosensitivity - reaction to sunlight, resulting in skin rash
4. oral and nose ulcers
6. serositis - inflamation of the lining of the lung or heart
7. reanl disorder - excessive protein in urine and/or cellular casts
8. neurologic disorder - seizures, or psychosis
9. anemia or low white blood count or lymphopenia or low platelet count
10. positive ANA
11. positive anti-DNA or anti-Sm, or antiphospholipid antibody or false pos. syphilis test
Other symptoms are:
shortness of breath
blood in urine
hair falling out
muscle pain and weakness
poor circulation in fingers and toes
tingling in extremities
raynauds (where fingers turn white when cold)
intollerance to cold
...to name a few
I have 1,3,4,5,9,10,11 as well as low grade fevers, abdominal pain, losing hair, fatigue, muscle pain and weakness, dizziness, poor memory, headaches, poor circulation, raynauds, cold intolerance, splinter hemorrhage.
Since you listed #10 & #11, I assume your doc did much lab work. Do you have a copy of the actual results? Are you seeing a rheumotologist? It is not unusual for rheumies to not be fully educated about lupus - perhaps you can call the lupus foundation in your area and ask for names of those that are more familiar with lupus. It is also not unusual to be seen by 2-4 rheumies before finding one you click with. If you doc denies lupus, what 'working' diagnosis did he give you?? Perhaps none of your symptoms are strong enough for a lupus diagnosis. There are 150 different connective tissue disorders and it takes time to sort it all out. Did he start you on any medications? Finally, don't push for a diagnosis of lupus - it can have serious ramifications for health insurance.
Hallelujah, Jan I've been praying for you and pryaing for an open door. I know it is a bitter/sweet thing, but God will help you through this. Medicine is helpful. Bless your heart. So many of us here know the frustration and the overwhelming sense of it all when you are sooo sick and drs. treat you like it is all in your head...or there is nothing wrong. It gets to be so frustrating.
It's a step and we are all here to help you through it.
I cried for 2 months when my GP said it was really looking like lupus. By the time I got to the rhemy's office I was ready to move forward, but she wasn't so sure it was lupus. So I went through another several months before any helpful medicine was given. It's such a long frustrating process. But honestly, the folks here at medhelp were invaluable. So thankful for my family here. If I could offer my shoulder for you to cry on I would. Cause I needed one several years ago too.
It has been a long road. I have moved on and accepted the diagnosis. It is just so hard with the roller coaster that the doctors put you through.
I had the opposite problem with meds. though. My doctors wanted to throw everything at me and in the long run it masked possible symptoms.
I have been taking plaquenil for 6mths and after two months of taking it, all my ANAs have been negative. It has been so frustrating.
I try to live one day at a time.
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