There are 11 criteria for a lupus dx. You must have at least 4 of the 11 to recieve a dx.
1. malar rash over cheeks (butterfly rash) (74%)
2. discoid rash, red raised patches
3. photosensitivity - reaction to sunlight, resulting in skin rash (50%)
4. oral and nose ulcers
5. arthritis (95%)
6. serositis - inflamation (inflammation) of the lining of the lung or heart
7. reanl disorder - excessive protein in urine and/or cellular casts
8. neurologic disorder - seizures, or psychosis
9. anemia or low white blood count or lymphopenia or low platelet count
10. positive ANA
11. positive anti-DNA or anti-Sm, or antiphospholipid antibody or false pos. syphilis test
Other symptoms are:
shortness of breath
blood in urine
hair falling out (27%)
muscle pain and weakness (90%)
poor circulation in fingers and toes
tingling in extremities
raynauds (where fingers turn white when cold)
intollerance to cold
lymph node swelling (50%)
...to name a few
Keep in mind that fibromyalgia, CFS, MS and lymes disease also have similar symptoms.
Test that will be done are:
scl 7- antibody
I'm sure I have left some out. But the best advice I can give to anybody going through this maze of diagnostic test is to SPEND TIME IN THE SUN JUST PRIOR TO YOUR DR. APPOINTMENT. What this does is, if you have lupus, it will cause the ANA to be very elevated and help the dr. find what is wrong much faster. I see so many people very sick for like 10 years before being diagnosed. I was sooo sick for a year and a half....until I read here on medhelp this very thing. My ANA went from 1:640 (which is high.....don't know why the dr. didn't think so..... to 1:2,560....which got their attention.)HELLO????
Does antiphospholipid antibodies point to a lupus dx? The test results are considered fair. I would need to do more research on what a positive reading would mean on that test. Hopefully someone who knows more can weigh in on that.
Just because your daughter has the antibody does not mean she will have problems as a result of them. 10-30% of people w/ RA, scleroderma and other forms of vasculitis have antiphospholipid antibodies. People w/ lupus "can" have problems w/ antiphospholipid syndrome as well.
There is something you should look for: IgG anticardiolipin antibody - it is more likely to lead to blood clots than IgM or IgA anticardiolipin antibody. Higher amounts of antibody also increase the risk of clots.
Sorry to hear your daughter is unwell.
What were the results on the antiphospolipid bloodtests?
May i ask has your daughter had any bloodcots? or miscarriages?
Has your daughter been tested for the ANtiphospolipid Syndrome?
If you coud post the test which was a low positive, and the reference range from the lab , that would help.
Also has your daughter been asked to go back for another bloodtest in about 12 weeks time to re-check the anticardiolipin?
I am really interested because, i suffer from the Antiphospolipid Syndrome, and it often gets Mis-diagnosed,
For some people this illness, can become a nightmare to live with, so i think with a correct diagnosis, and proper treatment then no problems which this illnes can cause, can be kept in-check.
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