Metanx

[Joni686]

I am just wondering how many lupus and/or fibromyalgia patients have heard of Metanx.  And if so, are you on it and what do you think about it?

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0%

 (0) 

Have heard of it.

85%

 (6) 

Never heard of it.

14%

 (1) 

Am on it with good results.

0%

 (0) 

Am on it with bad results.

7 Members voted

[Joni686]

Sorry I have taken a long time to make a post here but I would like to tell anyone with lupus/fibromyalgia/CFS/Diabetes to ask their doctor about Metanx.  I have lupus and fibro and this super vitamin is the same as several B12 shots and a few B3 along with folic acid etc etc.  You can google it for more information.  My point is I have been on it since January now and I swear my pain is less because of it.  I recently read that they are now giving Metanx to Diabetes patients and fibro patients because there is something about it that helps with the pain in nerve endings.  I promise you I have had help from this medication.  I jsut wanted to share it with all of you because I have not met many people who have even heard of it.
:D
Ask you doctor..... it is a prescription.

[karajo]

Hi Joni,
Welcome back!!!!  You were very missed!

I'm not sure, but my dr. has put me on a vitamin supplement that can only be prescribed by a dr.  I have yet to get it in.  But he claims it has helped him.  He said it has mega doses of vit D.  This maybe the same thing.  I'm excited!

Love you girl, Kara

[karajo]

I got my product in and it is called Vemma.

Thanks for sharing this info with us.

[gigi311]

Hi all,I'm Jennifer from New York.I have had lupus (SLE) for about 23 years now.I am taking plaquenil is all for now.I have an up-coming appointment with my doctor.I will ask her about this medication/vitamin that you mentioned here.I have so many problems now,and the Plaquenil is of no help right now.I will probably need Imuran again,I also have a kind of aropathy in my hands.I just read a letter she wrote for me and I didn't understand her writting very well.Is anyone else here having any kind of aropathy and deformaties in their hands/fingers also?Just asking if there are others like me......good luck to you all...GOD bless!!!

[Joni686]

Thanks Kara, I have missed you as well.  I am on here this late because I cannot sleep tonight.  The RLS is driving me crazy.  I just can't make my legs relax and allow me to sleep.  I hope you are doing well.  I am so busy with the wedding.  It is Dec. 5th. and I have a lot to do and hardly any energy.  I am faking it as best I can because I know nobody wants to hear me complain or see a sick bride.  I got bloodwork done last week and for the first time I have a new marker.  Antichromatin Antibodies were high.  I understand it is a marker for lupus and is helping doctors now get a better dx.  But I have also read it can be a sign of kidney problems from the lupus so I am a little concerned although I don't feel any worse than the usual, which is bad enough.  The Metanx has really helped with the daily pain, a lot.  Gigi you should really look into it.  I have been on Imuran and it did lower my ANA from 1280 to 420 for a while but then I got pneumonia and had to stop taking it.  I am going to check out the Vemma you mentioned Kara.  Gigi, I have two fingers that are starting to twist at the knuckle closest to my fingernail.  The one on my right hand sometimes burns and hurts.  I wonder if it is what you are talking about.
God Bless both of you.  I will be on and off at time until things calm down after the wedding and the holidays.
<3

[karajo]

Hi Joni,

I have a friend who had trouble  w/ RLS.  Someone told her to take a small glass of tonic water for RLS.  She said she no longer has RLS as long as she takes the tonic water. (found over in the liquor area)

I noticed that one of my fingers is bending over.  It swells some and hurts a lot.

I've never heard of the Antichromatin Antibodies.  I would think if your kidenys are affected, your renal functions would be off.  BUN, Creatinine, Uric acid, etc.

Praying for you sweetie.  That God would give you His strength and that you will feel marvelous for the wedding.  Really try not to stress.  Weddings can be stressful and it seems something always goes wrong.  So just learn to flow with the mishaps, 'cause they will happen. (I guess because we want everything to be so perfect).  Just watch those candles and make sure they are no too close to people's hair!!!  That's a sure fire way to mess up a wedding!  

Lovingly, Kara
I'll try to check out the Metanx