Hi guys, I am new to this community so this is my first post. I was recently diagnosed with lupus about a month or 2 ago. I have a pretty mild case, just some joint pain, hair loss etc, but the weirdest symptom I have been getting is purple toes. It is very strange, but my toes seem to be extremely sensitive to changes in temperature. For example, when I take a shower, my toes seem to be burning from the hot water even though the rest of my body is fine with the temperature. I have heard of Raynaud's syndrome, but I was wondering if anyone else has been experiencing something similar (especially the sensitivity to temperatures) and if there are any treatments?
Yes, yes, yes, I definitely have trouble in this area. Don't know what medicine you are taking, but I'm on Plaquinel and it has helped in that area. I still get very cold easily and my fingers and toes still turn white. They just haven't turned purple lately. We are having a really cold winter. Colder than usual.and I'm happy they are not turning purple along w/ the burning and tingling.
Glad to have you join us. We'd love to get to know you better.
Yes. Most definitely. I have Raynauds and that is a perfect description. I'm so used to my toes/fingers being cold that I don't even realize HOW cold they are until I put them in hot water, then they burn and turn bright red. It's annoying but harmless. One of the many things we have to get used to.
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