Lupus Community
SLE to Stage 1
About This Community:

This patient support community is for discussions relating to lupus.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

SLE to Stage 1

My doctor just informed me that I dont have SLE(which is what I was told originally), that I have stage 1.
Everything I am seeing says that there really isnt "stages" of Lupus and what I do see about stage one, its linked to SLE.
Whats the difference?
Related Discussions
2 Comments Post a Comment
Blank
434278_tn?1324709825
What kind of dr. told you this?  I'm pretty sre you are correct.  There is not "stages" of lupus.  Either you have it or you don't.  Now you can have mild lupus and severe.  Meaning there is organ involvement.  
Blank
Avatar_n_tn
I agree that there is no 'stages' other than with and without major organ involvement (ie, skin versus kidney.)  As karajo said, it can be mild or severe.

I wonder if he has decided that you may have Mixed (or Undifferentiated) Connective Tissue Disease - these are where several autoimmune diseases show symptoms but not enough to make a clear cut diagnosis of one particular disease.  These can stay level or can eventually develope into a diagnosis of one disease.  It can take years of watching symptoms and labs to make that leap.

At the first visit with my rheumy, he also was leaning toward lupus, but now into year 3, symptoms and labs have not evolved into anything truly specific.....which is good.  I don't want a Lupus diagnosis mainly because of the impact on insurance!

Do you have copies of your lab work?  The doc has to put ICD9-ICD9CM codes on the lab sheet (diagnosis for the lab work.)  I keep track of those codes and look them up each time to see what he is listing......you can find those codes on the internet.  He keeps mine very general in nature.

Hope this helps.....
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Lupus Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Autoimmune Answerers
1530171_tn?1418143903
Blank
TheLightSeeker
London, ON
Avatar_f_tn
Blank
grungema3
london, United Kingdom