Searching for a diagnosis

I hope you can help me understand where to go from here.  When I first became ill it was with some pain but mostly fatigue.  Back in July of 2007 the fatigue became so bad that I was forced to stop working.  All I could do for many months was make it from the bed to the couch and watch a bit of TV and sleep off and on all day, mostly falling alseep even in the middle of a 30 minute show.  I was first diagnosed with Mono which later we figured out was wrong.  Then came more pain and more blood work and I was positive for Mono, Epstein Bar, Cytomeglovirus, Chicken Pox and the Measles.  Now I understand that if you have at any time had those diseases, they will stay in your body somewhat but it was showing positive, enough for the city to get involved thinking I had Measles.  I then started on Prednisone and was told I had Fibromyalgia and maybe a Connective Tissue Disorder.  I was so dizzy I couldn't even walk across the room that I would walk crooked and run into something.  I slowly took myself off the prednisone and the dizziness got better.  I still get dizzy but they are dizzy spells, some are pretty bad but it's not constant dizziness at least.  I finally came across a doctor who checked my ANA and we found it to be 1:1280 which I understand is extremely high.  One question I have is that at one time while on steroids it went down to 1:300.  I have been told different things by different doctors but my question there is can steroids such as Prednisone actually lower your ANA?  I have had my DNA checked for Lupus and it is negative and I have had a Smith Test and it is negative but I continue to be fatigued, not quite as bad as 6 months ago but still fatigued and still have whole body pain.  I am on Celebrex and if I miss a dose I am in a lot of pain so I know it's helping.  I have a terrible memory and terrible concentration.  Most recently my hands have started to have veins pop up when I am going from a warm bath to the cool room (getting out of the bath) and sometimes a little on my feet.  One day I went shopping with a friend and I was not used to walking so much and at the end of the day my calfs looked as though someone had kicked me about 10 times and I was all bruised.  It went away after a warm bath.  My latest blood work shows my ANA to still be 1:1280 speckled, my complement level (CH50) is 44 BUT wouldn't Cellebrex be controlling the inflamation (inflammation) and have an affect on that number?  My Chromatin (Nucleosomal) Antibody is Positive 2.3.  My doctor keeps calling it Lupus and one doctor now says Raynauds or Vasculitis.  I asked if those could be the Primary disease or secondary and they say there is no way of knowing.  PLEASE PLEASE PLEASE IS THERE SOMETHING YOU CAN TELLME TO HELP CONFIRM WHAT IS GOING ON WITH MY BODY AND WHAT I SHOULD DO NEXT?  My email address is ***@****.  I need answers and direction please.  Thank you.

[zmombomb]

Are you staying out of the sunshine or away from UV lights of any kind?  UV rays from sun and flourescent lighting can cuase your sleepiness.   I spent 2.5 hours in the sun the day before easter and spent the next 30 hours sleeping soundly.  missed Easter entirely.  

Let us know what you find out.  

[Elmo2201]

I am in the same boat.  I have the exact same symptoms as you and no one can tell me what is wrong with me.  If I could, I would probably sleep for days at a time.  I was diagnosed with fibromyagia by my rheumy, but he said that was because my ANA had never come back positive.  My ANA is now positive and I have low Vitamin D.  My rheumy was more worried about my Vitamin D levels, that he didn't even mention the positive ANA.  I did not get a titer or a break down of the ANA, so I don't know if it has the landmarks for Lupus or not.  I just wish I had an answer.  Good luck to you.