LUPUS COMMUNITY
any one tried the new drug for lupus?

any one tried the new drug for lupus?

I called my pharmacist today and was asking about the new lupus drug. turns out, it's extremly expensive. i have medicaid and im quite sure it wouldnt cover the cost of it. Wow is it costly. I read about it and in people of color it doesn't work. I also understand that you will have to continue to take the steroids, if your on them. im not sure about this, it seems it got approved because they were pushing for some type of med for SLE. i take plaquinel, predison, and pain meds. i also suffer from other autoimmune diseases. they are secondary to my lupus. being there is no med or was no med for lupus something had to be producced. Benlysta is the name of it, if im spelling it right. It's got to be injected in the hospital, not really sure how all of it is done. I really had high hopes for it before it came out. And now, i dont. Maybe the cost will eventually go down, but most important find something that works for all people. im white, not that that matters at all but I want everyone to benefit from it. Not just the rich white folk.lol
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