LUPUS COMMUNITY
does anyone with lupus have seizures?

does anyone with lupus have seizures?

I don't have a lupus diagnosis, but my ANA is low positive.  My symptoms:  Dizziness/vertigo, fatigue, vision issues, balance issues, cognitive issues (name recognition, face recognition, place recognition), headaches, tingling toes/feet/legs, painful shoulders/arms, sore chest/ribs, heart palpitations, wrong words come out, memory problems, swallowing issues, dropping things, I just feel plain dumb and I started having partial and complex seizures October 09.  I have Chiari Malformation.  Have not had surgery.  Told this is mild.  

I sometimes wonder if some day I will be diagnosed with lupus.  Lately it feels like my heart is skipping a beat.  Ugg!  

Just curious if anyone with Lupus has issues with seizures and if you can tell me about your experience with them.  

  
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Hi.
Just to answer your post, the answer is yes people with Lupus can have seizures, blackouts, and lupus headaches. along with many more neurological problems.
Lupus can mimic many neurological diseases.
Also there is another illness which can go alongside Lupus, called the Antiphospolipid Syndrome, and this is an auto-immune disease, which causes the blood to clot quickly, often known as sticky blood. This illness can cause vision issues, balance problems, memory loss, migraines, tingling, pins and needles, dizziness and vertigo, hearing loss, menieres, etc, etc,
I would definately asked to be tested for this too, if i was you.
The testing for APS, which is Antiphospolipid Syndrome is two simple bloodtests.
LA= Lupus Anticoagulant, and ACA =Anticardiolipin Antibodies,

If you need anymore help , just give me a nudge.
Good Luck.
Nicola
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Thank you for this information.  I will ask about this at my next appointment.  

I have another strange thing happening.  Sudden pain in my fingers, broken blood vessel I think, because it becomes sore then bruised looking.  It's happening more often than I like.  

It's interesting you mention menieres.  In early December my hearing was muffling.  It was like I was under water.  I had pain in my ears.  I was dizzy, it was horrible.  I went to a ear nose and throat doctor who said my ears looked good, no infection.  I had a hearing test with minor hearing loss.  I began taking Diamox early November and within 3 weeks, I felt my ears unplug and something drain into my mouth (sorry a little gross).  I spit out blood clots.  

I began taking the diamox for something unrelated.  I began taking it for the pressure in my head.  I have Chiari Malformation, no surgery thus far (considered mild chiari).  

I'm wondering if the problem with my ears and the pressure in my head is from the Chiari or actually menieres (no diagnosis).  So confusing, and you need to be rich to figure it all out.  

I suppose I really confused you now:)
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Hi.
Gosh sorry to hear that you had hearing problems too, then you had the diamox and you was spitting the bloodclots out.
Well i would definately be asking for the two simple bloodtests to be done which i said in the first post.
I have the Antiphospolipid Syndrome, and i get sore bloodvessels, with bruising too.
So it maybe an indicator, or just a coincidence.

As for the Chiari Malformation, now i am stumped, as this is one condition i do know nothing about.
I have heard of it, but know nothing on this. I am more on auto-immune:)
Maybe mention this to your specialist who looks after , the Chiari, and they maybe able to shed some light .

I do know however, that a long time ago, i went deaf in one ear, and got vertigo, which was awful, and this was due to the Antiphospolipid Syndrome.


I hope you can get some answers, or sort out this problem .
Good Luck. If you need anymore help with anything more just give me a nudge.
Nicola
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