LUPUS COMMUNITY
need help figuring this out

need help figuring this out

Hi everyone, I have been living with Lupus for 10 years now, diagnosed for maybe 5 but this is not like any of the flares I usually get.  Its been going on for 1 month now and I haven't got any answers or help, I have no insurance which makes things very difficult, and I have to wait until january to see a reamatologist again.  I don't know if this is my lupus my fibromyalgia or something completly different.  It all started the day after my last family member here left to move to florida, after useing soy and whey proteing isolates 4 tablespoons a day for a month and having a diet soda everyday for a couple weeks. I'm not sure if any of those have anything to do with this but they are things I remember as differnt before this happened.  My first syptom (symptom) was a tighness completly surrounding my throat, it felt like the muscles were swollen or inflammed pushing my throat walls together til they would touch, then after about a week my symptoms increased to flushed, extreme shakiness, numbess, seeing sparkles and alittle light disturbances, chest and upper arms became darker red and extremly hot to the touch with dizzy spells, sneezing and more nasal congestion.  The back of my knee then seemed to swell, I'm getting muscle spasms from head to toe, with numbess, tingling and pin ***** sensations all over especially in my back and. Mostly legs.  Also having green diare.  Peircing pain thru out body. Now with all the shakiness, nightmares, insomnia, numbess, pain, dizziness, and muscle spasms it feels like the muscles in my legs are permantly flexed, pain thru my arms, and the muscle across the upper part of my chest feels like its just hanging there and about to slide off, while I'm wearing a choker around my neck. Please help.
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1464587_tn?1307495205
Forgot to add, new ayptom to add on today is it feels like I have a heating pad under my feet sometimes now.
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1464587_tn?1307495205
And my heart pounds alot
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471161_tn?1317194550
I got your message.  I need to think about the symptoms you described.  I will write back to you tomorrow.  My brain is going to sleep.  Try to get some rest...
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Avatar_f_tn
You might not like what I have to say..it sounds like the stress of a family moving started your lupus flare, sometimes they can last for months and months, some even years, are you on anything for stress? if not my doc used to tell me to use robentossun(sp) for stress.
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1464587_tn?1307495205
Yeah, that's one of the things I have been thinking of as well is the stress of my family gone.  They did a inflammation test before it had gone systemic and down into my legs bu that had come out ok, but nevertheless doesn't mean its not lupus.  A lot of the other syptoms (symptoms) I have b een having I have found in vasculitis and mutiply sclerosis, but as we all know lupus can mimic ms and can effect the central nervous system, probably one of the scariest ones of all.  Really hard to tell right now if its the lupus, or another condtion I might have developed.  I have been useing the dreaded prednisone and I still can't get this under control, the only thing I do for for stress right now is a homepathic treatment for greif and loss called natrum muriaticum you use for 4 days, benedryl at night and sleep md for sleep, I have started vitamins for fish oil bcomplex, b6, b12, and magnesium and vitamin c to try to get this under control.  Sorry for all the mistypes in the original post, I use my phone and sometimes it can't keep up :)
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1464587_tn?1307495205
I got 2 more labs done the ra came back "ok" not sure of the score yet as well as the ana this time. So does that really mean that its not the lupus right now? And could be something else like ms or vasculitis? Its really effecting muscle head to toe and central nervous system. :(
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1464587_tn?1307495205
*sigh* how in the world are you supposed to tell if you have beend diagnosed with lupus already if maybe you have developed lyme disease as well?  Or maybe even ms if lupus mimics ms???
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