what are your lupus symptoms

lately i've been having alot of pain, Tuesday night it was sharp shooting pain in my left eye, had to wear sunglasses inside because I couldn't handle the light, last night (well early this morning) i've had muscle spasms in my feet and legs. is this part of lupus?

[fox24]

Hi, were you diagnosed with Lupus?? I am not diagnosed yet but I cant handle the light either, my house is so dark and i wear sunglasses outside all the time. Im 33 yrs old and 2 children to care for and i have been like this about 5 months now and it's awful. I have severe muscle cramps/spasms daily in my arms and legs, charlie horses in my calves or ankles swell sometimes. I have also had 2 spells of Tremors lasting 15 minutes or so. Im having awful time with my ears plugging, loss of hearing (switch ears) -whistling-buzzing etc. I also have Petechiae spots on arms and legs (light case of it) and i am so scared. My hands get cold and clammy like ice (mainly fingers) and i keep having these faint spells (sometimes i pass out, sometimes i dont) -feel like crap every day and Dr took me off driving till i feel better. Apparently he thinks it's Autoimmune (Lupus, MS etc) he's sending me to Rheumatology for consult (and probably more tests) on August 18th This wed. I can keep ya posted on what happens.

[ami9342]

I'm in the process of being confirmed for Lupus. not 100% possitive yet, just had an anti-DNA test a week ago and waiting on results. I'm so sorry you are going through this and with 2 younger children to take care of. It's a challenge every day the spasms, charlie horses, swelling, pain in joints, my tremors have been awful! I also have petechia on my arms and legs. I've been doing testing for MS- EMG's, VER, MRI's, most have come out normal. I had a possitive ANA they suspect Lupus. I'm waiting for my doctor to get back from vacation (hope he had fun the last 2 weeks, i sure haven't lol) please keep me informed on how it goes for you! maybe we won't have to do this alone. Take care and good luck!!!

[fox24]

Best of luck to you and no it hasn't been a great ride.   I have been so ill for the past 6 months and cant stand it anymore. Mine are on my arms and legs but last week i developed a couple on my face and feel so ugly -wish it would all go away. Im assuming the Rheumi will send me for all those same tests as well. We HAVE to keep in touch -i dont have many ppl to chat with (i swear my friends think im crazy, lol).

[ami9342]

At times I think my friends think I'm crazy too. sometimes i wonder if I am. Tomorrow's your appointment right? let me know how it goes! good luck, I hope they can find something to make you feel better. keep in touch

[karajo]

Be sure and spend time in the sun prior to your appointment.  If you have lupus, it will cause the ANA to be elevated, thus speeding up the long-drawnout process of a dx.  

[fox24]

Well. . . I went to my appt. I failed all the tests the Rheumatologist gave me. At first he said Fibromyalgia and then he said, "that's not acting alone though" he did some more tests and i failed them as well. Im now being shipped to the hospital Saturday night for an MRI of brain for confirmation of Lupus or Multiple Sclerosis! Wasn't ready for that I guess. My mother has MS and was diagnosed at 32. . . . im now 33. And it's hereditary - im VERY scared now. Having the MRI saturday night I should have the report tuesday afternoon. . . i'll keep ya posted on the findings.

Thanks for being a friend. ;)

[ami9342]

How did your MRI go? were they able to determine anything? I originally started all this testing because my doctors thought it was MS, Lupus was my surprise. Hope all is well and they are getting this all taken care of!

[fox24]

I think im back to square one again and soooo frustrated. MRI showed sinus disease (hello, i live in New York) everyone here has that. lol. Rheumatologist says Fibromyalgia but i think it may be because he can't figure anything else out for me. He can't/won't give me anything for it (sux) because he says i have too many neuro symptoms and now wants me to see a neurologist for further testing, he says he suspects an underlying neuro disorder, im so tired and dont feel good to be bouncing around to all these dr's and getting nowhere. Waiting for insurance co. to approve yet another specialist so i can get an appt with neuro.
He wrote on my report that I have Telangiectasias and Erythematous area which i guess are caused by inflammation? He didnt explain to me about them. I guess that could be due to Fibro but somethings tellin me im being mis-diagnosed.

[lisachic]

I have lived in pain for years.  I cannot take anymore.  I have had to change positions at work so that I dont have to be on my feet all the time.  (Thinking this would help but not so far)  My Internal Spec. doctor said i have Fibro and my husband says its all in my head.  I cry almost every night because I hurt so bad.  I have the black outs...   migranes (migraines), spasms, tingling in my hands and feet...  My hands and feet are always cold to touch.  I am exhausted all the time and I have no drive to do anything because all that I loved to do I can't anymore.  The list goes on and on...  
I have no support and I have gone from a happy go lucky type of person to someone who doesn't care whether or not I get out of bed.  What do I do to try to get some answers?