Who has burning sensations?

[patsy10]

I am curious as to how many of us have or have had burning sensations.  This can also include tingling and other sensations like numb feelings, cold sensations etc....

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100%

 (16) 

yes

0%

 (0) 

no

16 Members voted

[patsy10]

I have all of it....burning, numb feelings, cold and hot sensations and feelings of water splashes or dripping.

[wonko]

my paresthesias include burning.  At first I just got mild tingling, but over time burning became more common for me, and I still deal with it daily.  The worst areas for my burning sensations are on my face (feels like sunburn on my cheeks) and in my forearms.  

I often get a feeling of cold water going down my legs when I walk.  When this symptom is active, with each step, it feels like cold water is running down my leg.  

I don't think I've ever gone totally numb anywhere, just a lot of altered sensations.

For me the burning is usually not my worst symptom, so I don't think it's as strong as what others have.

[ginak]

I have this feeling everyday. Its very irritating and I wish it would stop. Neurontin wasn't doing anything so I just stopped taking it.

[jason80]

In my case, usually the burning sensation is magnified by small increases in temperature of my skin.  For me the burning is quite bad to deal with since it is on my butt. It tends to occur in the same locations of my body, whereas the tingling tends to be a bit more randomly located.

I have all of the various sensations too, sounds like we all pretty much do.

[Hope75]

Burning is my main complaint, by far.  My feet burn mostly and it can be excrutiating.  Then, the burning travels all over my body.  It can be anywhere and includes dripping water sensations, tingling (especially in the heat) and just creepy crawly sensations.  My feet almost feel like when I was playing in the snow all day as a child, then I came in and tried to step my cold feet into a hot bath - ouch!  I even tried that Rebuilder where you put your feet in a bath and run electric currents through them.  I sent it back, not sure it would work with my neuropathy.  It may have some benefit for other forms of neuropathy.  I've tried a TENS unit too - the verdict is still out.  I just keep taking Neurontin, I think it takes the edge off but its not a miracle cure.

[Jena906]

For me it's in my feet and fingers.  It is especially worse in the morning, on the soles of my feet,  like hot coals. However the neurological symptoms are the worse!!! I want MY brain BACK .   My question is will it take IV's or will the doxy 200mg every 12 hours take care of all of this?????

[patsy10]

The oral meds work for me.  I'm not sure if doxy alone will work for you or not but it does for me.  Doxy works the best for me, even at a low dose.

[patsy10]

Looks like we all have this in common.

[jason80]

hijacking thread -- have others tried the TENS unit for any of these sensations. I didn't find it helped any but am curious how others responded. I get enough tingling!

[SOONERMOM]

I've also had every hard to explain paresthesia including burning, numbness, tingling, crawling, vibrating, buzzing, and water dripping off of head.  Sometimes the numbness is deep and I would swear my face is drooping, but it never is.  My neuro symptoms are almost all on my left side, and I once went completely numb all over on my left side.  It mostly just comes and goes.

I also get a weird feeling of the blood flowing through the left side of my face, hard to explain.  Almost like there is impaired blood flow there and in my feet sometimes.

I am starting to accept that it will never completely go away.  I have had periods of "remission", but it has always returned.  I have been at this for just under a year now and  haven't tried IV's yet (although I did try IM).

[patsy10]

I have had prolonged periods of numbness down my left side as well.  It starts on my face and runs in a line down my neck, back, cheek, hip, side of leg to foot.  It's like someone drew a line.  It feels numb but there is really no true loss of sensation.  I had an MRI during an acute episode of this and it was normal.  It has lasted for months at a time.

[Ree4tu]

I think burning may have been one of the first symptoms I had, but dismissed it as I must have pulled a muscle or something.  My first symptoms were a stiff neck which also burned like fire and the muscle twitches with numbness and tingling in my fingers and toes. I also had flu-like symptoms.

[Jena906]

How long do I need to stay on doxy 200mg  twice daily before my head clears up and I stop feeling light headed?  Or should I be switched to a different antibiotic, as I have seemed to hit a plato in the last 2 weeks (lots of stress lately, I know that is bad for me to heal) Can the doxy stop working? I go to the Infectous disease dr again in a few weeks so would like some feed back.  He seems to think IV's are best for the brain clearing up, however It is a 85% chance and very $$$$$$, even with ins, GULP. Flagyl sound like the cure all for cycst.  The dr said in the medical world there is no proven text that it works like the antibiotics do.   I would love to hear how to approach this with my dr at the next visit. Thanks for all the info.  

[patsy10]

How long have you been on doxy?

[Jena906]

I have been on doxy 200mg every 12 hours since december 20th 2008.  I am seeing an infectous disease dr who goes by ilads and not cdc for fighting this late stage lymes.  I was terribley ill and off work for 5+ weeks in dec of 2006.  Mri's , western blots, cardiogram, thyroid, etc was all checked along with mental and neuro specialist nothing but a quircky tsh of my thyroid, had to stop my levothyroxin (levothyroxine) to function part time at work again.  I wish I knew then what I knew now.  I begged to see an infectous disease dr as I could not afford one not covered by ins.  I spent alot for money for specialist to tell me something is wrong with me physically, but not what I was sent for at the time and it was up to my primary md to figure that out with tests.  The primary asked (since I work in  the medical field, I suppose) what I thought it was.  I said it has to be lymes.  So after a neg IGENEX test in june 2008, but I had + and ind bands where it mattered, the md sent me a refferal to a infectous disease dr and told me to wait to get in to him because he was the most aggresive (aggressive) at therapy.  So I did. At the the ID dr request another Igenex test was done in sept 2008.  Now since the time this all began I never was on anything but thyroid meds and of course a couple diff antidepresents to help with coping with the thought that I thought I had some terrrible disease.  Now off of zoloft since seeing 2 pyscologist, and their diagnosis was, "FIND a MD who will listen to you, there is something physically wrong NOT MENTALLY"  THANK GOD, I wasn't crazy or was I??? 2 years of the crazy fight yes I feel sick, DR's say well you look fine on blood tests.  SO back to my diagnosis, In december I started my fight with this disease that is so complex.  I wish I could find the right cure or answers to put an end to the maddness. What about you what is your story? I'm pretty new to this site. Since jan 2009.  But have found that what people talk about is important to our road to health.  It has helped me not to stop my anibiotics (herx every 28 days about, almost didn't make it through the first one, WOW is all I can say) but that was all my ID dr. had to hear and he said they (lymes) were running GOOD!   I see the ID dr this week and hope he doesn't say IV or he's done with me.  I would like to try flagyl and maybe some ceftin to change the battle before we start the IV's.  I would like to avoid the dangers and cost with that route.

[skarey]

Yes... I have numbness in feet.  I also get tingling in my arms/hands.  The numbness isn't completely numb either.  It is just an altered sensation (very hard to explain) cause I can feel it, but it's like my legs/feet aren't mine!  I also get the feeling of cold water running down my legs and occasionally on my face.  I have not yet been dx'd but find realize we all have a lot of neuro. problems.   However my neuro, told me I have no neuro disorders or problems!!    I too have been tested for MS twice... all tests normal... Am very anxious to find out what my lymes test reveals!

[patsy10]

Your description is me to a tee.  I was also told I have no neurologic problems.