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Am I definitely going to pass lyme to baby?
Hey I wondered if anyone can help!
I am very negative at the moment ! I'm 35 weeks pregnant .. Caught lyme in first trimester and only got diagnosed a month ago and have been on amoxicillin now since diagnosed and will be until the birth of baby.
I am aware that I fall into all 'unfavourable ' outcomes in regards to pregnancy outcome but I feel I need some kind of hope to hold on to ! I know what the odds are and the case studies etc.. And I have prepared myself for a congenital lyme baby but am I completely doomed? As in am I definitely going to have a really bad outcome like a still birth or neonatal death ... If baby has lyme I feel strong enough to cope and deal with this but I ant cope with loosing my baby..... Has anyone got any words of hope for me ?
All studies note bad outcome from first trimester infection which is when I caught it .... But I really need some ray of light or hope to hold onto I'm really struggling
Thank you
I am very negative at the moment ! I'm 35 weeks pregnant .. Caught lyme in first trimester and only got diagnosed a month ago and have been on amoxicillin now since diagnosed and will be until the birth of baby.
I am aware that I fall into all 'unfavourable ' outcomes in regards to pregnancy outcome but I feel I need some kind of hope to hold on to ! I know what the odds are and the case studies etc.. And I have prepared myself for a congenital lyme baby but am I completely doomed? As in am I definitely going to have a really bad outcome like a still birth or neonatal death ... If baby has lyme I feel strong enough to cope and deal with this but I ant cope with loosing my baby..... Has anyone got any words of hope for me ?
All studies note bad outcome from first trimester infection which is when I caught it .... But I really need some ray of light or hope to hold onto I'm really struggling
Thank you
Thank you . Apparently babesia is transferred too :( I have a feeling I have lyme bartonella and babesia which makes matters worse ! I don't care about me I just care for the baby! As if lyme wasn't enough. Do the others cross as easily / as much as lyme? More to think about.
The German lab are very helpful.. Are there testing accurate? X
The German lab are very helpful.. Are there testing accurate? X
HI,
As far as testing goes, you basically need to test for infections that can be passed through the plaecnta. As far as I know, this is lyme and bartonella but I am pretty sure nothing else.
Email Infectolab and ask them, I am sure they will know. They don't like making people pay for tests they don't need, they have always tried to be as helpful as possibl to me.
As far as testing goes, you basically need to test for infections that can be passed through the plaecnta. As far as I know, this is lyme and bartonella but I am pretty sure nothing else.
Email Infectolab and ask them, I am sure they will know. They don't like making people pay for tests they don't need, they have always tried to be as helpful as possibl to me.
You say, "I need to be strong!" You ARE strong already! It takes strength and courage to contemplate what could be problems and to make a plan to prepare for and deal with adverse circumstances. That means you are a good mother already.
You and your partner be sure to take good care of each other -- it sounds like you are already.
Take care -- we are all thinking of you and your growing family --
You and your partner be sure to take good care of each other -- it sounds like you are already.
Take care -- we are all thinking of you and your growing family --
Thanks a lot for your help! All of you I appreciate every comment!
That's Rico I will test for those two then definitely! Thank you.... I did think bartonella could be a possibility but I don't know why I say that.
I have has lyme 5months before I started taking the amoxicillin.. So hopefully I won't have too mug of a battle ... Maybe ... Although I don't want to be told by any doc it will be cured in three months if realistically it won't! I was wondering how long treatment would last for the baby if e did have it ? How would anyone know when he is symptom free ? Hmmm I don't know !!
I am due November 24th but am going to be induced at 39 weeks ! I can't wait to have him here in my arms so that I can stop worrying about all the worse stories ive read and focus on test results and then treatment or not ! Grr! I'm just so scared about it all .. I read a comment today that read 'all the deformed, disabled or dead babies come from women who caught lyme early and didnt treat it right' ..... A part of my heart sank .. I shouldn't read them but there are a few who believe that my scenario brings the worst outcomes and I can't get that out of my head :( but I need to be strong!
X
That's Rico I will test for those two then definitely! Thank you.... I did think bartonella could be a possibility but I don't know why I say that.
I have has lyme 5months before I started taking the amoxicillin.. So hopefully I won't have too mug of a battle ... Maybe ... Although I don't want to be told by any doc it will be cured in three months if realistically it won't! I was wondering how long treatment would last for the baby if e did have it ? How would anyone know when he is symptom free ? Hmmm I don't know !!
I am due November 24th but am going to be induced at 39 weeks ! I can't wait to have him here in my arms so that I can stop worrying about all the worse stories ive read and focus on test results and then treatment or not ! Grr! I'm just so scared about it all .. I read a comment today that read 'all the deformed, disabled or dead babies come from women who caught lyme early and didnt treat it right' ..... A part of my heart sank .. I shouldn't read them but there are a few who believe that my scenario brings the worst outcomes and I can't get that out of my head :( but I need to be strong!
X
A good LLMD is definitely the right person to give you the best recommendations.
But, if you can't get to one in time, then here are my thoughts as a patient.
Ehrlichia/Anaplasma are unlikely. I don't even think they are in humans in England. I wouldn't pay for testing for them.
Bartonella is a possibility and can be transferred to your baby. It is a bacterial neurological infection. The preferred meds to treat it are different than for Lyme, but there are several drugs that do treat both. Doxy is one of them in the early stages. I would get tested for it. The test refers to b.henselae, the name of the bacteria.
Babesia is another possibility. It is also transmitable from mother to child in the womb. It is a parasite that is a relative of malaria, and is treated with specific antiparasitic meds. Sometimes symptoms show up after a patient is well into Lyme treatment. I would get tested for it.
Both Bart and Babs can be false negative in blood tests. A negative is very encouraging. A positive is definitive and indicates treatment.
I don't want to add any more fear to your already worried psyche, but if you and/or your baby test negative for these diseases, just write the names of these two diseases down and put it away somewhere. If you or your baby get inexplicably sick with fevers and other unexplained symptoms in the months after birth, insist on evaluation and testing for both Bart and Babs before being dismissed as having a virus. If you turn up with either one, then take your baby to the LLMD for evaluation as well.
You really didn't have Lyme that long, so you have reason to be optimistic!
When is your due date? It sounds like you are a good planner and you're just about ready. :). I hope your labor is short and simple!
But, if you can't get to one in time, then here are my thoughts as a patient.
Ehrlichia/Anaplasma are unlikely. I don't even think they are in humans in England. I wouldn't pay for testing for them.
Bartonella is a possibility and can be transferred to your baby. It is a bacterial neurological infection. The preferred meds to treat it are different than for Lyme, but there are several drugs that do treat both. Doxy is one of them in the early stages. I would get tested for it. The test refers to b.henselae, the name of the bacteria.
Babesia is another possibility. It is also transmitable from mother to child in the womb. It is a parasite that is a relative of malaria, and is treated with specific antiparasitic meds. Sometimes symptoms show up after a patient is well into Lyme treatment. I would get tested for it.
Both Bart and Babs can be false negative in blood tests. A negative is very encouraging. A positive is definitive and indicates treatment.
I don't want to add any more fear to your already worried psyche, but if you and/or your baby test negative for these diseases, just write the names of these two diseases down and put it away somewhere. If you or your baby get inexplicably sick with fevers and other unexplained symptoms in the months after birth, insist on evaluation and testing for both Bart and Babs before being dismissed as having a virus. If you turn up with either one, then take your baby to the LLMD for evaluation as well.
You really didn't have Lyme that long, so you have reason to be optimistic!
When is your due date? It sounds like you are a good planner and you're just about ready. :). I hope your labor is short and simple!
That's the problem with not using a doctor -- if you miss taking a test for something, then you don't get diagnosed. And if you aren't diagnosed, you don't get treated. And you are still sick, and a lot of time and money gone.
For the sake of argument, let's say there are four possible infections overall: Lyme, bartonella, babesiosis, and ehrlichiosis (tho there may be others less common).
The symptoms overlap if you have more than one infection (which happens at least half the time), and streaks vs spots vs bumps, and muscle aches and pains vs joint pain -- it is all difficult to work out, even for the docs -- but based on their training and experience, they know which tests to order.
Without that training and experience, it is all just a big guessing game, and as you note, it gets very expensive very fast.
Then there is treatment. There are often different meds for these different diseases, and the order in which they are best treated is something a doc knows.
I know how expensive the tests are -- and that's why a knowledgeable doc is needed, both to keep the costs down, to shorten the time to diagnosis, to have a proper diagnosis, and to treat appropriately.
Lyme and the other tick ailments are not simple like a sore throat -- the causes are many, and the treatments various and interlocking. That's why you need to see a Lyme specialist.
That may sound like I am not helping you, but truly, that is the best advice, rather than 'order all the tests' or 'gee, it sounds like X disease, even tho I'm not a doc and have never met you but did see the cell photos you posted on the internet.' Lyme testing is an art, not like a +/- pregnancy test off the shelf.
We're just patients like you, not medically trained. We can explain our experiences in navigating the mess the medical profession has made of tickborne infections, and give suggestions on how to get diagnosed and treated, but we cannot (and should not) try to tell you what to test for or how to treat what you may or may not have.
Not trying to be harsh here, but I also wouldn't try to tell you how to rebuild the transmission on your car. Not a mechanic; and definitely not a doctor.
Please find a knowledgeable physician!
For the sake of argument, let's say there are four possible infections overall: Lyme, bartonella, babesiosis, and ehrlichiosis (tho there may be others less common).
The symptoms overlap if you have more than one infection (which happens at least half the time), and streaks vs spots vs bumps, and muscle aches and pains vs joint pain -- it is all difficult to work out, even for the docs -- but based on their training and experience, they know which tests to order.
Without that training and experience, it is all just a big guessing game, and as you note, it gets very expensive very fast.
Then there is treatment. There are often different meds for these different diseases, and the order in which they are best treated is something a doc knows.
I know how expensive the tests are -- and that's why a knowledgeable doc is needed, both to keep the costs down, to shorten the time to diagnosis, to have a proper diagnosis, and to treat appropriately.
Lyme and the other tick ailments are not simple like a sore throat -- the causes are many, and the treatments various and interlocking. That's why you need to see a Lyme specialist.
That may sound like I am not helping you, but truly, that is the best advice, rather than 'order all the tests' or 'gee, it sounds like X disease, even tho I'm not a doc and have never met you but did see the cell photos you posted on the internet.' Lyme testing is an art, not like a +/- pregnancy test off the shelf.
We're just patients like you, not medically trained. We can explain our experiences in navigating the mess the medical profession has made of tickborne infections, and give suggestions on how to get diagnosed and treated, but we cannot (and should not) try to tell you what to test for or how to treat what you may or may not have.
Not trying to be harsh here, but I also wouldn't try to tell you how to rebuild the transmission on your car. Not a mechanic; and definitely not a doctor.
Please find a knowledgeable physician!
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