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Any positive stories out there-like your feeling great now or 'cured'?
Any lyme forum needs these stories, if your 'cured' , in remision, or are now getting there, sharing your journey is awsome for others to know about how you accomplished it.
Of course, some of you arent googling lyme anymore..............your living again!
?
Of course, some of you arent googling lyme anymore..............your living again!
?
I just joined the Lyme forum at healingwell.com.
There are a lot of success stories there. It gives me hope.
Also, JackieCalifornia on here has been in remission (or cured) for a while now from what I've read in her posts.
There are a lot of success stories there. It gives me hope.
Also, JackieCalifornia on here has been in remission (or cured) for a while now from what I've read in her posts.
I can see by the "related activities" panel here (so it's no secret)---- are you taking antibiotics to help prevent transmission of Lyme?
I consider myself to be in remission.
I have no idea when I was infected, but suspect it was a long time ago, perhaps even in childhood, and that my body was able to suppress the infection. Then in 2007 I got sick with multiple infections, including bronchitis and sinus infections. I was 27 and a student at the time and kept putting off going to the doctor. When I finally did, it took months of antibiotics to clear those standard infections. Worse yet, I never really got "better" and started to have neurological symptoms like tingling in my extremities and face, poor concentration, and more than I can list.
After over a year of standard doctors who couldn't help, I was diagnosed clinically with Lyme and bart by an ILADS member LLMD in late 2008. I was treated with varying combinations of antibiotics for about 3.5 years. I took the first 9 months of treatment to slow down and only worked part-time, but other than that I kept my life going the best that I could, though there were lots of days when I was in tears dragging myself to work and a lot of uncertainty that I felt about my future.
Even after treatment I had lingering issues with extreme fatigue. Some of that got better when I finally got my subclinical hypothyroidism treated. I also learned of some hormonal imbalances so life got better after those were better addressed.
I work full time in what I consider to be a demanding, competitive, and satisfying career. I have less energy than counterparts my age but I have learned to be efficient and to respect my limits. I'm now 34, so who knows, perhaps some of my issues now are due to age and not from Lyme, but I do suspect my illness had some long-term effects. But life goes on, and it goes on pretty well for me.
Best wishes to all in finding a doctor they can trust and for receiving successful treatment!
I have no idea when I was infected, but suspect it was a long time ago, perhaps even in childhood, and that my body was able to suppress the infection. Then in 2007 I got sick with multiple infections, including bronchitis and sinus infections. I was 27 and a student at the time and kept putting off going to the doctor. When I finally did, it took months of antibiotics to clear those standard infections. Worse yet, I never really got "better" and started to have neurological symptoms like tingling in my extremities and face, poor concentration, and more than I can list.
After over a year of standard doctors who couldn't help, I was diagnosed clinically with Lyme and bart by an ILADS member LLMD in late 2008. I was treated with varying combinations of antibiotics for about 3.5 years. I took the first 9 months of treatment to slow down and only worked part-time, but other than that I kept my life going the best that I could, though there were lots of days when I was in tears dragging myself to work and a lot of uncertainty that I felt about my future.
Even after treatment I had lingering issues with extreme fatigue. Some of that got better when I finally got my subclinical hypothyroidism treated. I also learned of some hormonal imbalances so life got better after those were better addressed.
I work full time in what I consider to be a demanding, competitive, and satisfying career. I have less energy than counterparts my age but I have learned to be efficient and to respect my limits. I'm now 34, so who knows, perhaps some of my issues now are due to age and not from Lyme, but I do suspect my illness had some long-term effects. But life goes on, and it goes on pretty well for me.
Best wishes to all in finding a doctor they can trust and for receiving successful treatment!
Following-
Although I think that anyone who has truly beat this disease or at least thinks that they have, probably have moved on to bigger and better things as you sort of mentioned.
Leslie, how were you diagnosed with Lyme? The doctor that diagnosed you should have began you on some type of treatment. But you should know that any treatment takes time, and a lot of it.
I didn't see her other thread.
Although I think that anyone who has truly beat this disease or at least thinks that they have, probably have moved on to bigger and better things as you sort of mentioned.
Leslie, how were you diagnosed with Lyme? The doctor that diagnosed you should have began you on some type of treatment. But you should know that any treatment takes time, and a lot of it.
I didn't see her other thread.
I hate to be negative but I think "cure" is pretty rare for lyme. I think after it gets into the brain it's not easy to treat. I think the only people cured are those that just got an infection and the infection hasn't spread, then they hit it with 400 mg of doxycycline at least a month. Lots of people might think they are in remission.
Here I am treating it every day since about 3 days after I was exposed and I am still symptoms. Here I am 4 months later. The more I read on the Internet from doctors and patients, the more I see this becomes a condition you have to attend to daily. I think all I can do at this point is treat as much as possible with abx until I'm 3 months symptom free, and then go on herbals like the Buhner protocol for at least 2 or more years.
Then there are the people who strung it out hard and treated as aggressively as they could. Doing extreme things like salt/c, rifing, hyrogen peroxide therapy, or ozone therapy. Then there are other extreme therapies like IV abx for years, which has resulted in cures. I think that's why treatment is so controversial as is the disease, because it's so difficult to treat.
Here I am treating it every day since about 3 days after I was exposed and I am still symptoms. Here I am 4 months later. The more I read on the Internet from doctors and patients, the more I see this becomes a condition you have to attend to daily. I think all I can do at this point is treat as much as possible with abx until I'm 3 months symptom free, and then go on herbals like the Buhner protocol for at least 2 or more years.
Then there are the people who strung it out hard and treated as aggressively as they could. Doing extreme things like salt/c, rifing, hyrogen peroxide therapy, or ozone therapy. Then there are other extreme therapies like IV abx for years, which has resulted in cures. I think that's why treatment is so controversial as is the disease, because it's so difficult to treat.
I'm afraid that it's going to kill me because everything I read says no cure if not treated at onset. I can't tolerate losing or just I don't want to have this be a life and I used to be able to run. Now nothing I'm getting paranoia and sound sensitivity everything you think of rare too I have it! or was questioned I'm scared about what to do where to go and who can help me! I'll do anything. Where ever I have to go shaking i need help from someone.Please
I have late acute lyme and dx at age 31 and last week I got Rocky spotty mountain fever. I have been misdiagnosed with rare diseases have a terrible traumatic past desperate for help but how do you get it without a lot of money! I used my everything my mother had to treat illnesses mimicking lyme! Now what can I do I just lost control completely of my bladder and I really need help and I'm in tears and have been doing homeopathy after antibiotics diet everything
A very good topic! But I fear that most people who get better (aka remission) aren't going to read this.
However, to help things along a very brief synopsis of how I got better is:
After years of almost every antibiotic around I finally achieved a remission that, while not putting me back to normal, was very good! It was achieved while I was on 2 X weekly of bicillin injections for almost 4 years.
Then I moved to a state where Lyme is forbidden to be treated, thanks to the efforts of D.G. in Oregon. I regressed within a few months.
This isn't meant to say that bicillin will produce the same results for everyone but it did for me and for many others.
However, to help things along a very brief synopsis of how I got better is:
After years of almost every antibiotic around I finally achieved a remission that, while not putting me back to normal, was very good! It was achieved while I was on 2 X weekly of bicillin injections for almost 4 years.
Then I moved to a state where Lyme is forbidden to be treated, thanks to the efforts of D.G. in Oregon. I regressed within a few months.
This isn't meant to say that bicillin will produce the same results for everyone but it did for me and for many others.
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