Aa
Are these symptoms consistent with lymes disease or effect of Benadryl?
Over 2 weeks ago, they day before my first symptoms started, i felt a little sick to my stomach(acid reflux?), and the next day, i thought it was strange because i still felt the same so i took an antacid. later that day i took benadryl along with aceto,dextro, and phenyl, and i noticed my smell and taste disappeared just like that, and i had a constant phantom bitter taste. the next day i went to the ER, and they could not find out whats wrong with me, during my time there my heart rate was tachycardia(100bpm), furthermore i was in the ER i noticed i was twitching constantly and i thought it was the cold air, but it wasnt cold in there.
Later i started twitching and developed jerking myclonically mostly over my body, it was worst at night, and become intense when i went to sleep. i also developed flashes and sparks, including floaters near my peripheral vision.
Pins and needles started on the left side of my body as well, as the weeks went by my symptoms were still present and then i noticed more vision issues, as the words on a projector were making an afterimage even if i wasnt moving my eyes, i noticed images i see were shaking even when everything was still. The most alarming symptoms was that i loss the sensation of feeling hunger(normal apeptite though), loss of sensation of poop in my intestines(still capable of pooping but very difficult), also i have breathing issues, shortness of breath, doesnt feel , ilike my breathing is very effective and getting oxygen. i also cant feel my tears or the inside of my nose as well.
Later i started twitching and developed jerking myclonically mostly over my body, it was worst at night, and become intense when i went to sleep. i also developed flashes and sparks, including floaters near my peripheral vision.
Pins and needles started on the left side of my body as well, as the weeks went by my symptoms were still present and then i noticed more vision issues, as the words on a projector were making an afterimage even if i wasnt moving my eyes, i noticed images i see were shaking even when everything was still. The most alarming symptoms was that i loss the sensation of feeling hunger(normal apeptite though), loss of sensation of poop in my intestines(still capable of pooping but very difficult), also i have breathing issues, shortness of breath, doesnt feel , ilike my breathing is very effective and getting oxygen. i also cant feel my tears or the inside of my nose as well.
I have looked at MS, lyme, Celiacs and diabetes neuropathies(unlikely since they take years to show symptoms), autoimmune(not ruled out),(tumors not ruled out, unlikely), parkinsons(unlikely since it takes years to progress, andi dont show most of the symptoms. thyroid issues(maybe but unlikely). i still have another pcp"rolls eyes" appt in march 3rd, a specialist in 2 months aprl30th"rolls bigger eye" the long delay is due to me being on MEDI-CAL system. sorry for the bearer of bad news, my symptoms arnt going away, they were waxing and waning, and ive mentioned that when symptoms usually come back, they do it with a new vengeance.
i went to my pcp, and she dismissed my symptoms "im making it up, and genetics. and she refused to do any tests besides the b12 and cbc, she probably will consult with a specialist.
she put me on 2000iu d3 supplements, I am only taking 1k, because just a few days ago, i took 2k and b12 1k, it made my symptoms worst(i think). My loss of sensation is progressing, it includes everything internally stimulated, pins and needles are still on my face, hands and legs, mostly on face. i suspect its not b12 deficiency, seeing as how i reacted to it a few days ago. i have zeroed in on my parietal lobe, which controls all sensations(yes what im feeling now), injury, tumor, autoimmune to it can cause my symptoms, because i cant find other cause, i will still request a lyme to rule it out though. I cannot go to a lYME doctor, because ive been doing research on them, and find thier methods questionable, i know lyme people believe what they say, being on long term antibiotics, and herbs, can do more harm than good. i know jackie california that you believe in lyme, but i need more proof in order to be diagnosed with lyme disease.
I have no sensations whatsoever of my own organs(when they decide to send a signal). damage to the parietal lobe is now, my suspicions now, since its the only thing i can think of that could have all my symptoms progressing simultaneously.
I have looked on yelp of the LLMD/ND in my area, though 1 or 2 maybe good, the majority of them seems to be very fishy. a doctor just cant diagnosed based on clinical symptoms alone, and then order bunch of random test, that they cant even verify. I know you beleive igenex and llmd are good, but im extremely skeptical.
she put me on 2000iu d3 supplements, I am only taking 1k, because just a few days ago, i took 2k and b12 1k, it made my symptoms worst(i think). My loss of sensation is progressing, it includes everything internally stimulated, pins and needles are still on my face, hands and legs, mostly on face. i suspect its not b12 deficiency, seeing as how i reacted to it a few days ago. i have zeroed in on my parietal lobe, which controls all sensations(yes what im feeling now), injury, tumor, autoimmune to it can cause my symptoms, because i cant find other cause, i will still request a lyme to rule it out though. I cannot go to a lYME doctor, because ive been doing research on them, and find thier methods questionable, i know lyme people believe what they say, being on long term antibiotics, and herbs, can do more harm than good. i know jackie california that you believe in lyme, but i need more proof in order to be diagnosed with lyme disease.
I have no sensations whatsoever of my own organs(when they decide to send a signal). damage to the parietal lobe is now, my suspicions now, since its the only thing i can think of that could have all my symptoms progressing simultaneously.
I have looked on yelp of the LLMD/ND in my area, though 1 or 2 maybe good, the majority of them seems to be very fishy. a doctor just cant diagnosed based on clinical symptoms alone, and then order bunch of random test, that they cant even verify. I know you beleive igenex and llmd are good, but im extremely skeptical.
I realized that my loss of sensation includes everything within my body that is stimulated by the brain, such as hunger, full or empty bladder, emptying or full bowels, feeling anxiety(i can feel anxiety but not in my stomach, full or empty stomach,,,etc.) Its like my nose as well.
I just went to the pcp at one today, and showed her the printed list of symptoms mentioned in my posts, with slight modification to the list. We went over, have you ever smoked, do you do drugs, all the regular stuff. She started asking about family history/heriditary stuff, i denied anything genetic in our family that was significant. She looked at my kaiser records(kinda made a mistake by blabbing out in october).
She kept going back on that said i have very high cheek bones, and ask genetic history again. Also from octoboer when i had blood work done, for other reasons, she noticed i had vit D deficiency. We brought up autoimmune disease, but we quickly dismissed as possible cause of my current issues(i was negative for celiacs in the past). Now the doctor started questioning me about mental issue: anger issues, relationship with friends families. She also gave the indication that i was "crazy or all in my head" when she said what if they dont find anything on my test, and indicate a "therapist" in the future. She gave the impression i was a hypochondriac, because she looked at my kaiser med records, and noticed ive been to different specialists in the past, that were unrelated to the current issue. She also kept asking to see a picture of my brothers, to see if we look alike, im pretty sure we dont look like each even remotely similar. Probably looking for a genetic cause.
After we went through all the symptoms i brought up the big "L" word, Lyme, and she says these symptoms could fit criteria of lyme disease, i also queried what kind of test, and they said they dont have the specialized lyme tests(like the ones suggested on this forum), she will speak to an infectious disease specialist and see where to go from there. Lastly she also indicated that these could be an underlying conditions, but mostly pointed that it could all be in my head. She will be checking for CBC(BLOOD COUNT), and vitamin B12 deficiency as well. She doesnt seem convinced what i told her will be enough, because i dont have joint issue, malaise or some kind of lyme defining symptoms. After the tests comes back she probably thinks i need my head checked instead of doing anything further. Overall, we are back to where we are in the beginning, what is the cause?
IS VITAMIN D an indication of other deficiency., I was not satisfied with the visit, as she was only willing to do 1 or 2 deficiencies, i wanted to check all of them for deficiency, and of course lyme, she made it look like its going to be "i made this up" or its an underlying conditions.
She kept going back on that said i have very high cheek bones, and ask genetic history again. Also from octoboer when i had blood work done, for other reasons, she noticed i had vit D deficiency. We brought up autoimmune disease, but we quickly dismissed as possible cause of my current issues(i was negative for celiacs in the past). Now the doctor started questioning me about mental issue: anger issues, relationship with friends families. She also gave the indication that i was "crazy or all in my head" when she said what if they dont find anything on my test, and indicate a "therapist" in the future. She gave the impression i was a hypochondriac, because she looked at my kaiser med records, and noticed ive been to different specialists in the past, that were unrelated to the current issue. She also kept asking to see a picture of my brothers, to see if we look alike, im pretty sure we dont look like each even remotely similar. Probably looking for a genetic cause.
After we went through all the symptoms i brought up the big "L" word, Lyme, and she says these symptoms could fit criteria of lyme disease, i also queried what kind of test, and they said they dont have the specialized lyme tests(like the ones suggested on this forum), she will speak to an infectious disease specialist and see where to go from there. Lastly she also indicated that these could be an underlying conditions, but mostly pointed that it could all be in my head. She will be checking for CBC(BLOOD COUNT), and vitamin B12 deficiency as well. She doesnt seem convinced what i told her will be enough, because i dont have joint issue, malaise or some kind of lyme defining symptoms. After the tests comes back she probably thinks i need my head checked instead of doing anything further. Overall, we are back to where we are in the beginning, what is the cause?
IS VITAMIN D an indication of other deficiency., I was not satisfied with the visit, as she was only willing to do 1 or 2 deficiencies, i wanted to check all of them for deficiency, and of course lyme, she made it look like its going to be "i made this up" or its an underlying conditions.
dO YOU THINK its the symptoms of LYME. My symptoms also are cyclical and wax and wane. Everytime it stabalizes then the pins and needles reappear then a new symptom i my symptom worsens.
I will be going to doctor today, its medi-cal doctor, so i dont have insurance for private physicians, i assume they charge several hundred per visit. I also notice when i fall asleep, i feel like im going to instantly fall deep asleep like a narcoleptic, but ive been able to prevent that for the most part. Would doing a search on YELP help, since googled it and alot of them are in SF, but they seem to be all private physicians. I AM ON MED-ICAL with SF.
Welcome to MedHelp Lyme -- sorry you're feeling poorly. Lyme is different in everyone, and while summer is a common time to be infected, it can happen any time of year. What counts is listening to your body and taking it seriously.
I know of a very good Lyme specialist likely not too far from you, if you would like to have the name. As a rule, we try NOT post the names of Lyme specialists in the open here, because in some states the local and state medical boards crack down on docs who diagnose and treat Lyme aggressively, and it gets visitors here confused about why we might list names of docs in one state but not others. California, bless its heart, is very open minded about Lyme disease, but there is still backbiting by some docs, who don't think Lyme is a serious thing.
If you don't want to go to a Lyme doc right away, and since you are having problems with your vision, you could start with an ophthalmologist (MD who specializes in eyes) -- I was startled to learn that they are often among the most aware among MDs when it comes to Lyme.
You may or may not have Lyme, but a doc who is broadminded enough to consider Lyme is also likely to think bigger thoughts about what else your ailment might be.
Let us know how we can help --
I know of a very good Lyme specialist likely not too far from you, if you would like to have the name. As a rule, we try NOT post the names of Lyme specialists in the open here, because in some states the local and state medical boards crack down on docs who diagnose and treat Lyme aggressively, and it gets visitors here confused about why we might list names of docs in one state but not others. California, bless its heart, is very open minded about Lyme disease, but there is still backbiting by some docs, who don't think Lyme is a serious thing.
If you don't want to go to a Lyme doc right away, and since you are having problems with your vision, you could start with an ophthalmologist (MD who specializes in eyes) -- I was startled to learn that they are often among the most aware among MDs when it comes to Lyme.
You may or may not have Lyme, but a doc who is broadminded enough to consider Lyme is also likely to think bigger thoughts about what else your ailment might be.
Let us know how we can help --
Have an Answer?
You are reading content posted in the Lyme Disease Community
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods
