Aa
Baby no 2 ???
Hi guys
I'm doing okay having a short break from treatment as my yeast was bad .
Anyway going back on a triple abx therapy next week .
My little boy is 9 months now and is doing great
I really want to try for another baby but with lymes I'm not sure it's possible ?!! I would be on safe abx whilst tryin and would take them throughout .
What's your guys opinions ??
I'm doing okay having a short break from treatment as my yeast was bad .
Anyway going back on a triple abx therapy next week .
My little boy is 9 months now and is doing great
I really want to try for another baby but with lymes I'm not sure it's possible ?!! I would be on safe abx whilst tryin and would take them throughout .
What's your guys opinions ??
I am so glad to hear your son is doing well! That is great! Nine months is such a fun age.
From what I've read, taking antibiotics while pregnant greatly reduces the odds of transferring it to a fetus, as the antibiotics do a good job of clearing the spirochetes from the blood. (It's the ones in cyst forms or biofilms hiding out in organs, joints, connective tissue, etc. that are so hard to kill.)
What does your Lyme-treating doc say about your own health at this point? The ILADS recommendation is to continue treatment until symptom free for 8 weeks. Are you still having symptoms? I expect if you do decide to try again, you'll want to take antibiotics for a while first to reduce the odds of infection from conception.
I'll send you a private message about ideas on yeast treatment.
From what I've read, taking antibiotics while pregnant greatly reduces the odds of transferring it to a fetus, as the antibiotics do a good job of clearing the spirochetes from the blood. (It's the ones in cyst forms or biofilms hiding out in organs, joints, connective tissue, etc. that are so hard to kill.)
What does your Lyme-treating doc say about your own health at this point? The ILADS recommendation is to continue treatment until symptom free for 8 weeks. Are you still having symptoms? I expect if you do decide to try again, you'll want to take antibiotics for a while first to reduce the odds of infection from conception.
I'll send you a private message about ideas on yeast treatment.
I can't encourage you enough to get your daughter to a doctor who will evaluate her for Lyme and treat her if appropriate. Failure to develop properly and missing major milestones are common in babies born with Lyme. It only gets worse with time. Caught early in life, it's reversible. Left too long, it can cause permanent damage to a young, developing body.
I seem to remember you're looking for a doctor for yourself, too. When you find one, book a joint consultation for both of you. It could make all the difference in both your lives.
While "official" statements say there's no reports of transmission via breast milk, I seem to recall reading that Dr. J, the famed pediactric Lyme specialist, has recommended against it. He has said he's seen everything.
The "official" information says that no child ever got Lyme from breast milk and they've said this based on some data from 10-20 years ago, including a study of 7 women with Lyme whose breast fed babies supposedly didn't get it. It's disturbing that anyone would come to such a conclusion based on only 7 patients, but I seem to remember back in the days of emerging HIV, CDC officials insisted that no one could get HIV from heterosexual sex because they had examples to prove it wasn't transmitted that way. Well, that assumption sure turned out to be false.
I don't really understand how they can definitively say it's not possible. All they can honestly say is that they don't think it can happen. Absence of proof is not proof of absence. And the medical "establishment" has a history of ignoring case studies and evidence about Lyme from anyone who disagrees with or contradicts them. For example, they still insist there's no Lyme in the South, despite extensive scientific evidence to the contrary. They still insist a so-called negative Lyme antibody test proves a patient doesn't have Lyme.
Lyme DNA has been definitively found in breast milk. What they don't know is if it's just pieces of DNA or if it's from potentially infectious spirochetes. Even if it's a live spirochete, it's unlikely to survive stomach acid. But maybe there is that odd chance of absorption through a sore in the throat or mouth.
Given what I have been through, I personally would never risk exposing my child to it through breast feeding while I had Lyme. No risk is worth it to me. My daughter was exclusively fed formula and is thriving and healthy, doing well in school and tall for her age. Clearly, breast feeding is an important public health issue but there are also exceptions, cases where the risk is not worth the benefit.
I encourage any Mom with Lyme to talk to their LLMD and do their own research on the topic of breast feeding with Lyme and come to your own decision that you feel comfortable with.
I seem to remember you're looking for a doctor for yourself, too. When you find one, book a joint consultation for both of you. It could make all the difference in both your lives.
While "official" statements say there's no reports of transmission via breast milk, I seem to recall reading that Dr. J, the famed pediactric Lyme specialist, has recommended against it. He has said he's seen everything.
The "official" information says that no child ever got Lyme from breast milk and they've said this based on some data from 10-20 years ago, including a study of 7 women with Lyme whose breast fed babies supposedly didn't get it. It's disturbing that anyone would come to such a conclusion based on only 7 patients, but I seem to remember back in the days of emerging HIV, CDC officials insisted that no one could get HIV from heterosexual sex because they had examples to prove it wasn't transmitted that way. Well, that assumption sure turned out to be false.
I don't really understand how they can definitively say it's not possible. All they can honestly say is that they don't think it can happen. Absence of proof is not proof of absence. And the medical "establishment" has a history of ignoring case studies and evidence about Lyme from anyone who disagrees with or contradicts them. For example, they still insist there's no Lyme in the South, despite extensive scientific evidence to the contrary. They still insist a so-called negative Lyme antibody test proves a patient doesn't have Lyme.
Lyme DNA has been definitively found in breast milk. What they don't know is if it's just pieces of DNA or if it's from potentially infectious spirochetes. Even if it's a live spirochete, it's unlikely to survive stomach acid. But maybe there is that odd chance of absorption through a sore in the throat or mouth.
Given what I have been through, I personally would never risk exposing my child to it through breast feeding while I had Lyme. No risk is worth it to me. My daughter was exclusively fed formula and is thriving and healthy, doing well in school and tall for her age. Clearly, breast feeding is an important public health issue but there are also exceptions, cases where the risk is not worth the benefit.
I encourage any Mom with Lyme to talk to their LLMD and do their own research on the topic of breast feeding with Lyme and come to your own decision that you feel comfortable with.
"Your doc is the one to guide you on this, not a bunch of amateurs on a website."
So true.
The advice a person gets here on this forum, where no one is a doctor and we're all amateurs (the same as other Lyme forums), may not be the best advice.
So true.
I did a quick run through some of the other Lyme forums for pregnancy and Lyme and found many PubMed articles addressing this.
They were posted by amateurs but the links were to non-amateurs such as the CDC, PubMed etc.
Bottom line, it just depends on the information given by amateurs---- and if they can give links to valid information sources. If not, then they're just testimonials, not always bad information but sometimes suspicious. (I read all testimonials. The ones I consider the 'best' are ones backed up by a verifiable and valid source.)
Examples:
(I can't give the links to the on-line forums due to the rules here. But I can give the links provided by some of the on-line forum members.)
"Lyme disease acquired during pregnancy may lead to infection of the placenta and possible stillbirth; however, no negative effects on the fetus have been found when the mother receives appropriate antibiotic treatment. There are no reports of Lyme disease transmission from breast milk."
http://www.cdc.gov/lyme/transmission/
"However, the therapeutic approach to pregnant women with Lyme disease should be antibiotic treatment, according to the clinical manifestation and the timing of the tick bite."
http://online.liebertpub.com/doi/abs/10.1089/vbz.2010.0102
"In comparison to patients treated with antibiotics, untreated women had a significantly higher risk of adverse pregnancy outcomes "
http://www.docguide.com/ceftriaxone-better-amoxicillin-or-no-treatment-lyme-disease-during-pregnancy
Those are just a few of the ones I found.
**************************
[Megan---- the snip below will be of interest to you especially, taken from the same link.]
"The most common adverse outcomes among these women were babies who were born small for their gestational age and babies who were born prematurely (7 cases). "
*********************************
@nervousmommy----- I believe there's a good chance that both you and your next baby, if that happens, will be o.k. since you'll be on antibiotics during pregnancy.
So true.
The advice a person gets here on this forum, where no one is a doctor and we're all amateurs (the same as other Lyme forums), may not be the best advice.
So true.
I did a quick run through some of the other Lyme forums for pregnancy and Lyme and found many PubMed articles addressing this.
They were posted by amateurs but the links were to non-amateurs such as the CDC, PubMed etc.
Bottom line, it just depends on the information given by amateurs---- and if they can give links to valid information sources. If not, then they're just testimonials, not always bad information but sometimes suspicious. (I read all testimonials. The ones I consider the 'best' are ones backed up by a verifiable and valid source.)
Examples:
(I can't give the links to the on-line forums due to the rules here. But I can give the links provided by some of the on-line forum members.)
"Lyme disease acquired during pregnancy may lead to infection of the placenta and possible stillbirth; however, no negative effects on the fetus have been found when the mother receives appropriate antibiotic treatment. There are no reports of Lyme disease transmission from breast milk."
http://www.cdc.gov/lyme/transmission/
"However, the therapeutic approach to pregnant women with Lyme disease should be antibiotic treatment, according to the clinical manifestation and the timing of the tick bite."
http://online.liebertpub.com/doi/abs/10.1089/vbz.2010.0102
"In comparison to patients treated with antibiotics, untreated women had a significantly higher risk of adverse pregnancy outcomes "
http://www.docguide.com/ceftriaxone-better-amoxicillin-or-no-treatment-lyme-disease-during-pregnancy
Those are just a few of the ones I found.
**************************
[Megan---- the snip below will be of interest to you especially, taken from the same link.]
"The most common adverse outcomes among these women were babies who were born small for their gestational age and babies who were born prematurely (7 cases). "
*********************************
@nervousmommy----- I believe there's a good chance that both you and your next baby, if that happens, will be o.k. since you'll be on antibiotics during pregnancy.
"I really want to try for another baby but with lymes I'm not sure it's possible ?!! I would be on safe abx whilst tryin and would take them throughout. What's your guys opinions ??"
-----------------
Lyme apparently does not always find a way to cross through the placenta to the baby, but I don't know what the latest data is on this aspect. Your doc is the one to guide you on this, not a bunch of amateurs on a website.
If you are not sure of your doc, then consider seeing another doc for a second opinion -- preferably a Lyme specialist.
-----------------
Lyme apparently does not always find a way to cross through the placenta to the baby, but I don't know what the latest data is on this aspect. Your doc is the one to guide you on this, not a bunch of amateurs on a website.
If you are not sure of your doc, then consider seeing another doc for a second opinion -- preferably a Lyme specialist.
To try to answer your question:
"I really want to try for another baby but with lymes I'm not sure it's possible ?!! I would be on safe abx whilst tryin and would take them throughout .
What's your guys opinions ??"
The obvious expert would be to read everything written by Dr. RJ the pediatrician expert for Lyme (and gestational Lyme) in New Haven, CT.
Since his medical investigation debacle I'm sure he's very cautious about what he has ''in print" on the web but exploring other forums which have a larger participation might help you.
What I've read is that being on antibiotics before conception, and during pregnancy will greatly reduce any chances of transmission.
Then, when the baby is born, have him/her tested plus the cord. Maybe even have the cord preserved, if they can/will do that in the UK.
Since you're 'ahead of the game' you can get your ducks in a row first------ glad to see you're prepared.
"I really want to try for another baby but with lymes I'm not sure it's possible ?!! I would be on safe abx whilst tryin and would take them throughout .
What's your guys opinions ??"
The obvious expert would be to read everything written by Dr. RJ the pediatrician expert for Lyme (and gestational Lyme) in New Haven, CT.
Since his medical investigation debacle I'm sure he's very cautious about what he has ''in print" on the web but exploring other forums which have a larger participation might help you.
What I've read is that being on antibiotics before conception, and during pregnancy will greatly reduce any chances of transmission.
Then, when the baby is born, have him/her tested plus the cord. Maybe even have the cord preserved, if they can/will do that in the UK.
Since you're 'ahead of the game' you can get your ducks in a row first------ glad to see you're prepared.
I am so glad your son is doing well.
I think if you have an LLMD to follow you closely and chose your medications to be on during pregnancy and you really want another child, with a knowledgeable doctor you and your child should be ok.
There is no 100% guarantee with Lyme. I would do what is in your heart.
I think if you have an LLMD to follow you closely and chose your medications to be on during pregnancy and you really want another child, with a knowledgeable doctor you and your child should be ok.
There is no 100% guarantee with Lyme. I would do what is in your heart.
I didn't know that I had Lyme disease when I was pregnant with my daughter. She wasn't growing properly and my amniotic fluid levels kept dropping. At first we thought it was CMV(I tested positive) but amniocentesis ruled that out. Then they thought it was a number of other things that could have been causing her problems, but I never got any solid answers. The pathology report said my placenta was deteriorated but no specific reason why. It was 9 months after she was born that I finally tested positive for Lyme. I'm sure no one ever tested me or the placenta during my pregnancy since we live in Texas where"Lyme doesn't exist", but now I have no doubt in my mind that its all related. She's still not growing the way she should. She turned one on the 19th and she's not even 16lbs. I have no idea what the future holds for her or where to begin but I wouldn't advise anyone to take a chance going through what I did.
So glad to hear you are doing well, and your baby also.
Are you taking antifungal medication against the yeast? It helped me a lot, and then I kept taking antifungal supplements in capsule form to keep it away. It worked well. There are several brands; I had one I liked called 'Yeast Cleanse', a brand name by a particular manufacturer, but there are others as well.
There is a physician at Cambridge who has written on Lyme and pregnancy. Have you heard of him? Might be worth a consult before proceeding:
Colin A. Walsh MB BChMRCPI
Specialist Registrar in OB/GYN
Addenbrooke’s Hospital, Cambridge, UK
Best wishes to you and your growing family!
Are you taking antifungal medication against the yeast? It helped me a lot, and then I kept taking antifungal supplements in capsule form to keep it away. It worked well. There are several brands; I had one I liked called 'Yeast Cleanse', a brand name by a particular manufacturer, but there are others as well.
There is a physician at Cambridge who has written on Lyme and pregnancy. Have you heard of him? Might be worth a consult before proceeding:
Colin A. Walsh MB BChMRCPI
Specialist Registrar in OB/GYN
Addenbrooke’s Hospital, Cambridge, UK
Best wishes to you and your growing family!
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