This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, Joint Pain issues, Living with Lyme Disease, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments.
I was tested for Lupus, RA, all kinds of infectious diseases, STD's and Aids. All negative, ITher
lyme disease test showed up positive for IGM P23, but that was not enough to consider it to consider it Lyme Disease, my dr. was going to start treatment for it anyway, since nothing else was positive (cat scratch fever, e. coli, bartonella all negative) but after CT's and US results wants me to see an oncologist. The only other positive results is EBV IGg VCA virus of 8.0 when it should be 1.0, very high, and C-Reactive protein high at 6.0.
Would Lyme cause those kind of results or could Lyme cause cancer? what does the protein p23 have to do with cancer? This has been a roller coaster since April Fools Day, my first appointment!!
the thyroid ultrasound results are a bit confusing to me and I haven't spoken to my doctor yet, and wont until Monday afternoon, but they did find more nodules than just the one that was found on the CT scan. T
There are 3 nodules all together. One on the right lower lobe 1.1 cm, isoehoic with anechoic rim, the Left Isthimus has a nodule, 3.6mm a vague hypoechoic area. The lower left lobe has a isoechoic structure 4.1mm, there appears to be a halo. No hypervasularity appearing, Impression - multinodular goiter.
The only thing now is to correlate all this with the nodes found in the neck on the CT, (no US was done on the neck) but CT showed jugular chain, bilaterally fron and back nodes and one occiptical node, and under the chin, submandular and submental regaion which I have read is not a good sign.
The first time I had any tests done was an ultrasound on my breasts after 2 mammograms and they found 2.7 cm lymph auxillary tail nodes and said to come back next year that it was nothing to worry about. Now it seems I have them everywhere! The Pelvic US showed the same thing many, many cysts on endoemetrial complex, heterogenous in appearance and nabothonian cysts and a 13mm on ovaries with endometrial thickness and ct showed inguinal nodes under 12mm.
All of this started with swollen nodes, fatigue, and tachycardia, abnormal blood counts and urine analysis. For the past two months I have had elevated WBC, lower RBC, high platelets, and high Lymph#. Urine has consistently shown protein, blood and leukocytes. Most of y pain is in pelvic area and bones.
6 months ago I noticed if I run my hand along the bones in my lower leg I would feel pain in the bones now it is that way with my skin over the joints and especially the knees, I feel lumps under my skin in these places and have told this to every doctor I have seen.
I'm just one big nodule/cyst!!! By the way what is the difference between a tumor and a nodule, node, and cyst??
It sounds like your doc is trying to be very thorough, which is good, but may not have a progressive view of Lyme. I'm not medically trained, so I'm guessing this because he is covering all the bases with the testing, but is not pursuing what may be Lyme, which is a fairly common infection these days.
For example, band 23 on a Lyme test will not light up positive except in the presence of Lyme bacteria. It is one of only a few bands on the tests that have that quality. That your doc says it's not enough to qualify as a Lyme infection indicates that he is not a progressive thinker about Lyme disease. There is much research going on and there are advances in diagnosis and treatment, but many of them are ignored by so-called mainstream medicine, for political reasons. If you go to ILADS [dot] org, under the tab 'about Lyme' and read Burrascano's 'Diagnostic Hints ...' you'll see how an LLMD (a Lyme specialist) thinks.
There are possible co-infections other than the three you list, but your doc may not have tested you for them, based on your symptoms. An LLMD could explore that with you.
I have heard from other Lyme patients that lumps under the skin are not uncommon, and they come and go. I don't know what they are inside, but odd swellings are not unusual in Lyme.
Lyme can and does mess with the whole endocrine system, including thyroid. It happened to me. I got some thyroid nodules, which in an abundance of caution, my LLMD had tested by FNAB [fine needle aspiration biopsy] to be sure there was not a concurrent cancer going on, and it was all negative. So don't automatically assume you have cancer, okay? Your doc is just being careful, which is good.
You may have or have had EBV, which is a pretty common virus causing infectious mononucleosis. Thus the positive result on that test could indicate a current or recent EBV infection.
C-reactive protein is high when you have inflammation, and that can happen in Lyme and other things too, so I wouldn't worry about it too much. Many of us with Lyme have inflammation of various kinds, lumps and swellings in joints and elsewhere.
To answer your questions:
"Would Lyme cause those kind of results or could Lyme cause cancer?" Yes, I think Lyme could cause those test results, and no, I don't think Lyme can cause cancer. It's a bacterial infection. I've never read that cancer is caused by bacteria.
"What does the protein p23 have to do with cancer?" Nothing that I know of.
So in your situation, I'd wait till the tests come back, get copies of ALL your test results, and find a Lyme specialist for a second opinion, but you don't necessarily need to tell your current doc you are going to do that. NonLLMDs often don't react well knowing that a patient is going to see an LLMD, because they are often considered quacks. Some of them may be, but that's true of 'regular' docs too.
I had lyme first undiagnosed, and finally got so sick, read about lyme disease. Told Doc I thought I had lyme or cancer, then she found breast lump
then I was diagnosed with lyme and cancer. I was on iv antibiotics for a long time, and had to do alternative cancer treatment due to how sick I was. I wanted the tumors biopsied for spirochete, mycobacteria, fungi, and bunch of other stuff but they refused. I have since learned that intracellular pathogens cause cancer. ie, infections like viruses, fungi, mycoplasms, bacterias, can get in to the cells, and make them form cancers. I have read alot about this stuff. rife machines, IV antibiotics, and lots of other treatments help lyme, but I dont feel completely cured yet. I feel like I have lost my soul. I am not the person I used to be. I am a shell..... Seems to attack your joy, complex thinking, creativity, etc. along with the physically disabling joint, muscle, fatigue issues, etc. Lyme is the great masquerador, many diseases are undiagnosed lymes. guillon berrae, lupus, Multiple Sclerosid, fibromyalgia, rhumatoid arthritis, myasthenia gravis, parkinsons disease, alzheimers, and many many more. Do your research. What these all have in common is no one really knows exactly what causes them. They put all your symptoms in a basket and then see which disease name you fit closest too. What a CROCK. They keep coming up with new diseases hmmmmmmmm.
I was diagnosed with everything, Lupus, vasulitits, hashimotos. my c -reaction protein was high, EBV, and many more but my Lyme brain, I have lesions on my brain, keep me from remembering at this minute but I agree with Jackie, I have never heard of it causing cancer. It can "pretend" to be all these other illnesses though so having someone (an LLMD) who really understands this is the key in guiding your way through it. I do have swollen lymph nodes all over my body which hurts but I heard this is not uncommon.
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