Lyme Disease Community
Curing Lyme Disease
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This forum is for questions and support regarding What Causes Lyme Disease, Diagnosing Lyme Disease, and Joint Pain. Topics for discussion also include Living with Lyme Disease, Babesia, Bartonella, Rocky Mountain Spotted Fever, Anaplasmosis, other Tick Borne Diseases, Nervous System issues, Prevention, Risk Factors, Skin Disorders, Symptoms and Treatments

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Curing Lyme Disease

This web site sounds really good and after studying about glyconutrients it sounds really promising. But I cannot find anyone or anything on the net where someone is using it.

Has anyone tried this or is it just a money making scheme? http://www.curelymes.com/index.html
17 Comments Post a Comment
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Avatar_f_tn
Welcome to MedHelp Lyme --

I looked at the website you mention in your post, and while cleaning up one's diet and generally taking care of the body are good (especially when ill), I don't see anything on the website that indicates it has anything special about its suggested treatment.

Their motto -- "The bottom line is you can't cure Lyme disease but we have found that you can cure the symptoms of Lyme" -- indicates they are selling stuff (vitamins, supplements) that may be helpful generally, but won't cure.  I don't personally buy their reasoning.  Too vague and contradictory imo.

Lyme is a bacterial infection, and while there are herbs that can be used in treatment, the usual medical approach of using antibiotics to kill the bacteria is usually the first stop.

The bacteria that cause Lyme is in the same family as the bacteria causing syphilis, the incredibly destructive spiral-shaped bacteria that invade the brain and body, wreaking havoc and, without antibiotic treatment, often ending in dementia and death.  Bottom line:  Lyme is serious stuff and needs a medical doctor, in my non-medically trained opinion.

I have found that diet is critically important to keep the body and mind working while the infection is treated, so herbs and supplements are often used (I take a small boatload of them every day still), but I personally would not substitute glyconutrients alone for all other medical care.

Sorry.
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Avatar_n_tn
That web site is not talking about substituting glyconutrients for diet and neither am I.

But all my studying is showing that they are making a big difference by adding them to a good program. Perhaps you could do some study and take more careful note of what was said before condemning and commenting.

Sorry also.
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Avatar_n_tn
I have heard of more people that have beaten lyme naturally and without antibiotics actually.

I keep on hearing how antibiotics are sometimes killing people or landing them in the emergency ward.

If it caught early than antibiotics is the go for sure and you would be crazy not to take that path.

But I am hearing of more people beating it with good raw food diet and herbs alone and not 1-3 years of antibiotics only to have it come back when they stop taking them as so often happens.

Everyone has to choose what is right for them and doctors are not always right. Here in Australia they say lyme is not here so most doctors will not give you anything at all even if you know you have it.
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Well, you asked for an opinion, and I gave you mine.  No need to be offended.

Good luck!
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1763947_tn?1334058919
Sorry, haven't heard of it . I have not heard of people beating it with more natural things. As one of my long time Lyme suffering friends says, if herbs and such would cure Lyme,we would all be on it.

For me, having been bit over 20 years ago, the herbs and supplements I have tried have helped but not cured it.
Have to agree with Jackie.

Good luck.
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Avatar_n_tn
Doing it naturally means raw food diet and green smoothies and no meat.

It means immune boosters such as beta glucans and enzymes to bust the cysts and antimicrobials like spriro, catsclaw and other antimicrobials and perhaps now it seems glyconutrients. It means going all the way. No junk food, no coffee or alcohol.

It means doing all that is outlined on this page as well as the raw food diet without meat. http://www.beatlymenaturally.com/treatment-outline/

And here are the reasons treatment fails. http://www.beatlymenaturally.com/reasons-treatments-fail/

The ones doing all these things correctly are the ones beating it naturally.

Have any of you gone all the way like this?

Anyway, thank you for the best wishes and same to you both.
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1763947_tn?1334058919
As said in a previous post, if herbals worked, everyone would be on them and cured.
I take Dr Zhangs herbs in addition to abx. I am still in treatment.

Good luck.
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Avatar_f_tn
Hi Geoff!

I am catching what you are throwing.  There are so many natural healthy diet/supplement options and suggestions for so many of our modern ailments.  

The more I learn the more I know I have to learn about this. In saying that, having battled this since 1983 under many different names and titles that have suited the medical profession along the way, gathering all the facts that relate to each individual and each individual symptoms list and co-infection list is paramount for a cure.  All of our histories, number of tick bites (if known at all), strain, chemical insults, financial status, support systems all contribute to our illness and eventually cure pathways.

It is really hard doing this in Australia with the widespread ignorance in the overall medical community.  However, even in that there are some amazing individuals really sticking their necks on the line to wake the Government up to the truth of Lyme Disease in Australia.  In fact we even have doctors who have personally battled this fight.

During my 29 year battle, I have personally tried everything. I have juiced it, and smoothied it, supplemented it, been vegan and only drunk water (filtered of course).  My training/career began as a dispensary technician in pharmacy and was also a consultant for Bioglan.  I passionately believe in natural first but there is a genuine place for antibiotic treatment.

In fact if my doctor 29 years ago good have looked at my bulls eye rash and given me the antibiotics I needed then, we probably wouldn't even be having this conversation now.

So to answer your question specifically in relation to "herbastat", no I have not specifically tried THEIR supplements.  Does this mean that I am not willing to try it in the future ...no.  Does this mean that I have not given up meat, alcohol, coffee, tea, junk food, bread, processed food, cooked food......No, because I have.

Everyone here is doing their best to beat this.  We need each others support and encouragement, advice and personal testimonies, suggestions and compassionate ear when we just need to vent a little frustration, even have a little laugh at our selves along the way.

I hope that you find the pathway that you need to walk through this if that is what your desire in being on this forum is.  All the best!
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Avatar_n_tn
Thanks Robyn,

Firstly, I have since first posting here being communicating with the person who sells herbastat and do not feel comfortable at all with him. He is putting up a new web site and insists it must be hard sell and that it has no side effects. I told him that is not possible and that the best he could say what that most do not have side effects. He agreed and said that would be more honest. Hence I had decided days ago that I would not be trying his product as I have no confidence in the person at all regardless to if his product works or not for anyone.

But the other thing I mentioned was the eight essential good sugars our cells need to communicate and heal and that I have found is the missing link for some people. So I have ordered another product with just the glyconutients and I am going to see if that helps me and will let others now in time how that goes. See this for more info on these good sugars. http://www.glyconutrientsreference.com/whatareglyconutrients.html and for a tesimonial see http://www.glyconutrientsreference.com/whoneedsglyconutrients/testimonials/cfs.html

But the one thing that cannot be challenged is that everyone will do better without the bad sugar and junk food and a raw food diet etc. I have found in the last few weeks that many are still drinking and smoking and this is not going to help them.

Antibiotics definitely have their place and especially if caught early where they become a must do but if caught to late and they have to be long term they can also land you in the emergency ward or worse. So some may prefer doing it totally naturally. And I have heard of a few that have beaten it that way now and yet I have not heard of anyone beating it with antibiotics yet when caught late but I am sure there must be.

I want to see everyone here get well and there is no doubt the role good nutrition plays and that can only ever be positive and help but I respect everyone's choice to choose their own direction.

But what becomes a problem is when someone leaves feedback here that says that going all the way with good nutrition and herbs and vitamins and all the other things required do not work at all or everyone would be doing that. It is a known fact that that this is wrong as it has worked for some. The question is why not for those it did not work for. What did they forget or do wrong or miss or is it a weakness in their own bodies? We are all different of course and what works for most may not work for all as a result.

So putting down the complete natural way and saying it will NOT work at all for anyone is negative and wrong and takes away what could be a great option.

I asked if anyone had tried all and gone all the way but that question was side stepped and again it was quoted that if herbs worked for all then everyone would be doing that.

But that is not what I said. I made it clear that good nutrition and total diet change was needed as well as many other things and gave a web site as an example of the things that were needed and why that treatment may fail.

Some for example do not address the cysts and that is just one reason why treatment may fail for both antibiotics and natural.

I was giving positive information that could only improve ones health and that got condemned and then so did I for being negative when in fact I was the one leaving positive information and got accused of being negative when it was the other person being negative and taking away a known good option that could work for some or even most if done right.

I want to be able to help here but it is hard when good information is put down as useless and then I am left having to defend myself.

I think it is someone else that needs a kind personal message to ask them not to put down good suggestions from other people here.

If people do that here and you have someone qualified giving good advice getting put down. What choice do they have?

Basically two. Say nothing and realize that you cannot help here and leave in which other good people that this could work for miss out and are penalized. Or you have no choice but to defend something that you know has worked for many people.
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Avatar_f_tn
I can see what you are saying Geoff.

However, I am also aware that one of the ladies above HAS cured her lymes and antiobiotics was a big part of that treatment.

I have tried all natural change my entire life option...and here I am 29 years later trying to stop this once and for all.  My best of intentions with the natural approach didn't prevent me from passing it on to my husband and four children.  That is something that I have to live with everyday.  I am just extremely grateful to have found a bulik billing lyme literate doctor in Australia who has battled this himself and just gets it.

From the outside looking in I think this is why you may have inadvertantly rustled some feathers above.  I know that a few of you comments got my back up for a moment by assuming that people who use antibiotics were perhaps taking a short term easier option that changing their diet.  My change of tactics with this thing began a year ago when I had to have my gall bladder out even though there were no stones because it was badly diseased because of long term infection.  Antibiotics early on could've nipped it in the bud.  My previously unsymptomed gall bladder had flared so badly BECAUSE of a massive dietry change for the better....go figure hey?

Anways, good bunch of people here who all come from different places, cultures, histories and hurts.......reading between the line helps everyone and will probably help your stress levels too.  As we all know stress with this thing is soooooo counterproductive.  Have a great day!
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Avatar_n_tn
I think I have been misunderstoood as I never said antibiotics were taking an easier option than diet.

Please show me where I said that.

Please note what this article says about why may are not beating it with antibiotics. http://www.townsendletter.com/July2010/sapi0710.html
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Avatar_n_tn
One more thing Robyn,

Have you had tests to see how your body is handling neurotoxins?

What is your MSH level? There is something you have missed besides not understanding what I have been saying.
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Avatar_f_tn
Implying and stating are two different concepts.

"How can any intelligent person expect to beat it when they are not looking after their bodies. " and

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Avatar_f_tn
"I will take the intelligent approach that builds the whole health of your body rather than damaging it with pharmaceuticals that can land you in the emergency ward or worse. "

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Avatar_f_tn
Your approach and assumptions are that we are not intelligently looking after our bodies by making poor uninformed choices regarding our own health that can land us in emergency or worse instead of using a natural approach like your intelligent approach.  You are making many assumptions about everyone.  You don't know us or our journeys to this point to be making those kind of assumptions.  

My MSH is within the normal range.

This is where I step off this train....thanks for the ride, I think. Time for me to pause for a moment and reflect upon my supportive friends and family who are and will continue to support me through this in a non confrontational manner.  Cheers!
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I wish you all the best in your recovery Robyn.

Take care.
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Thanks Geoff.  Same to you.
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